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You've come to the right place, Amy! There are many
people in this forum who have serious issues with
their appearance. Personally, being a crusty old male
curmudgeon, I am not so inclined. I do remember my
younger days, though, when appearance was so much more
important, and believe me, I feel your pain. There
are plenty of young women in this forum who know
exactly what you are talking about. I am sure you
will find the kind of rapport you are needing.
Mike

It's funny how parents respond differently. My dad made me go to a
doctor even though I dreaded it. Then after my surgery he used to
set the oven timer and make me walk around for certain amounts of
time each day. Admittedly, this was probably necessary because I
would never have gotten out of bed if he didn't make me. I will say
I do feel kind of bad with respect to my parents in a way. They
both feel like my scoliosis is their fault in one way or another,
and it makes me sad that it makes them so sad sometimes. I almost
feel like I am what's causing them pain. My dad even told me that
he knows my current boyfriend cares about me b/c he doesn't care
about my 'deformity,' which made me feel bad because I try so hard
not to think about it. And although I think it's quite ugly, I
don't think it's anything that ever repelled people. In my younger
days, I was quite the dater and I never had problems with guys. So
basically for me, it could be characterized as vanity I guess, but I
don't think so. There are so many things that I would like to do if
it weren't for this deformity. Very simple things that people take
for granted, like wear a tanktop, a fitted shirt, or a formal gown
(if I ever have to pick out a wedding dress I'm screwed!); stop
positioning myself all the time so my 'hump' is away from peoples'
lines of vision; get a short haircut; or even just lean forward when
I'm sitting down or riding a bike. There are countless things that
I automatically do without thinking in order to try to hide my
deformity. Has anyone here had a rib thoracoplasty? Just curious
to hear more about it. Well thanks all for reading & responding to
my posts. Look forward to continuing this dialog!
Amy

Hey, Liz:
Sometimes jaw pain can come from TMJ, night grinding, stress
(clenching/grinding), or allergies (did the dr check to see if there
was fluid behind your ears? That can cause internal inflammation
that goes all the way down into the jaw.) I'm sure there are other
things, but those were the first that came to mind.
Good luck!
Lorena

Dear all,
My name is Amy and I had scoliosis surgery in September of 1993. I
was 13 at the time. Now I am nearly 24. I don't know anybody else
with scoliosis - well at least severe scoliosis. There are some
people that I meet that say they have scoliosis but sometimes I
don't think they know what they're talking about. Anyway I
certainly do not know anyone else who has had surgery or even been
braced. (I was not braced) I suppose that I have begun to realize
how isolated I feel with respect to this problem. I still have pain
but what bothers me most is the appearance of it. As I get older, I
can tolerate it less and less. I am admittedly tired of talking to
people who don't have scoliosis, or those that 'know' someone who
does. I know they try to help by the things they say, but often I
end up feeling misunderstood and trivialized. I really don't want
to hear one more person say 'you really can't notice,' or 'nobody
who loves you will care.' I have started to realize the ways in
which my scoliosis affects me on a daily basis, now that I'm actualy
stopping to think about it. In any event, I am looking for an
appropriate forum in which I can have some dialog with others
sharing this problem. Perhaps this is it?
Amy

Hello Marti,

My name is Misteiye and I have had you on my email for quite some time now but my puter has been on the fritz. and now it is finally bug free and virus free.

I have scoliosis and I have a doctor that is my pcp and my specialist in internal medicine. I live in Eugene OR. I have a wonderful husband named Russell or Russ and 2 grownup kids. girl and boy. My daughter visits us often. and our son we visit as much as possible. My daughter, named Malia- worries about me constantly. and that is ok to a point. I will be having a osteoma bone tumor removed in the next week or 2. I will have it done in Portland. She lives in Cottage Grove. It should just be a one day in and out withthe tests in the morning and the surgery in the late afternoon or early evening. and then released a few hours later. the doctor I have already met and he wants to do some extra tests of my throat cause he says there is 2 things going on in my throat. one isthe tumor and the other is something else that has something yto do with alot of pain.

So I now am just waiting for the scheduling person there to call me and say that the date is ...... and time..... etc. Are you having any luck on finding any better doctors that are dealing with your kind of strong pain? your last message I have says you let a doc. go cause he did not deal with the strong pain that you had. do you still had that much pain or is it increased or decreased? I am hoping (of course) that it is down a lot. My pain is up and down for the scoliosis. I just hate the fact that I have to wait for the 1st evaluation to take place in juneon the 24th. I have to wait and take shots at the ER/Hosp. and get muscle relaxants ifthey will give them to me and then just take the pain pills they can give to me. it is hard forthem too cause of all the other pills I have to take for my epilepsy, fibromyalgia,asthma,allergies,and arthritis,and GERD. and they are not through testing me. that is just the ones I know I have now. THe GERD one is the newest. I still dont
know if it is beyond and into cancer. they said they will knkow in 1 month. if I dont feel better in 1 mo. then I have to have a special test and that will tell them part of what they want to know.

Any how that is what is going on somewhat with me. I really do hope you are doing ok.

I dont mean to be mean but the way you spell your name I cant tell if you are male or female pls tell which one, sorry, I just cant tell.

I must go now cause it is 8:31pm here pacific time. and I still need to eat my dinner. so chat again later.

Hello Natalie, My name is Misteiye

I have Scoliosis too but I dont get to see my doc until June 24th. so you are ahead of me. I have no Idea what my specialist will tell me what my choices are. I think he will say putting some rods in my back.

Are you very frightened about having an operation or the first choice? what is your biggest fear?

Mine is that I am in my 40s and I need a specialist that will listen to me and do what is really best for me. I think it will be the rods and backbrace to start off with me. this does nnot bother me. I want it.

Are you getting support from your family? I only get support from my present family. My folks and family when I was your age did not support me in anything. so if you are getting some sort of good support dont knock it. ok. My daughter who is 19 and on her own and my son who sees us and on his own gives me full support and that is hkow I deal with alot of my stress. which I know you must have a lot of your nights and days and I am guessing that you are doing anything and everything to keep your mind off the pain you are suffering. right? that would be the thing to do especially if your pain is anything like mine. Mine is in the lower back mostly but it shoots up my back sometimes too and I end up going to the ER and then I can only get relieved by getting pain shots and relaxers in the forms of pills. do you have this problem too?

I hope this is the only disease you have. I also have others but this one is quite new to me. so you are ahead of me [INLINE] I wish I had only one but ontop of that I also have epilepsy and fibromyalgia. and the last one the insurance doesnt reckognize yet. so I cant get pain doctors or long term care for pain management yeet. when they have some solid names for this disorder then the insurance will give me the health care I need now. [INLINE] So I do feel hkopeful that you hopefully dont have any other diseases. this one of Scoliosis is bad enough. [INLINE]

Hi Liz, this is Misteiye. I dont know how to fix that problem,I have windows 98 and my puter is running fine and has no bugs. I am hoping though that one of our other members has an answer for you. I also am wondering how you are doing. My puter was on the fritz and thanks to a devoted friend she took all of the bugs/viruses out and now my puter is running quite smoothly. [INLINE] So I am now back on and ready to find out what I have missed. I hope you are well and that your energy is not too low. I am ok in most respects but my back is acting up alot and the scoliosis is so much a mistery still to me. I will get to see my specialist for the 1st time in June on the 24th. so I must just use pain pills till then. and grit my teeth til then.

Well I think I should go now . but will keep in touch.

When I try to print my emails on hotmail I get the message that there is an error on page, a pop up window is blocked so I can't print them.

I have windows XP, I also have zone alarm. How do I change the settings so I can print my hotmail messages.

Manythanks

Liz

How do I ensure that files in word are shown alphabetically. When I open a file in Windows XP the list of files is not shown in order so I cannot find easily the one I need. I have to go into My Documents to see the list alphabetically which means I have to come out of the letter file I am using, then go into the My Documents shown on the desktop.

I look forward to hearing from you.

Liz

Hi

Do you know what can cause jaw pain and how it can be treated? I suffer from scoliosis and am on tablets for inflammation, one I take at night, I have been told I can also take painkillers when needed. The pain in my jaw makes my ear hurt and my throat but there is nothing wrong with them. The Dr has told me to go back in 6 weeks if I'm no better.

I look forward to hearing from you.

Best wishes

Liz

Hello Lorena,
It certainly appears that spammers are joining the group...hard to
say as the membership list is not available to us. Don't know
whether this was deliberate or an oversight, but makes it impossible
to reference malicious posts.

I am experiencing up to 48 hour delays on all the

I posted a message on part of this subject before because the email
address for the Coans on the home page didn't work.
1: It takes several hours, even a day or so, for my posted messages
to show up. I am a long-time member. I do not include the text of
the message to which I am replying or any attachments. There should
be no reason for this delay. It is frustrating and greatly prohibits
in-depth conversation on any subject as regular posters cannot reply
back and forth on any subject. A single "back & forth" exchange might
take nearly a week!!
2: I originally thought the delay might be because the moderators
were pre-screening all the posts in order to weed out spam and
viruses. However, judging by the epidemic of spam with virus
attachments, it appears this is not the case. Are these spammers
actually "Joining" the group?
May we have either effective and timely pre-screening, or timely
posting of our messages, please? I don't have this problem on any of
the other boards I use, and it is irritating enough to make me want
to quit coming here. I feel passionate about sharing info and
encouragement on scoliosis, so I have been sticking it out, but
wonder how many people have lost interest because of the big delays.

I have been released from my pain Dr. because he does not deal with this really severe pain. I am also going to see a surgeon but until thien does anyone have any help for me or just encouragement? I am 52 and fused T2 to L4.

marti

Thanks, Renee!
Good lesson here: if it looks just the slightest bit
goofy, don't open it! Why would anybody send an Excel
file to this group anyway? I just automatically
delete ALL attachments in this group, no matter what
they seem to be. Better safe than sorry.
Mike

I have windows XP and Outlook Express 6 and keep getting the following error message:

Account pop.freeserve.co.uk
Localhost
Protocol POP3
Port: 38444
Secure SSL
Error No: 0x800CCC0F

Please can you advise what to do.

Many thanks

Liz

Hi Renee, Thanks.

I've noticed a lot of attachments on this board. I assume they're ALL garbage, contaminated, or both. At any rate, I NEVER open them.

If any members here are actually trying to say something via attachment, please include a few sentences describing what you are attaching. Otherwise, experienced internet users will just delete your post un-read.
"R. Green" <rflg77@...

I feel I must warn everyone not to open the excel file, I scanned it and it has a virus.

Renee

Here is the file.

I feel I must warn everyone not to open the excel file, I scanned it and it has a virus.

Renee

From: Reversing Falls
Date: Sun, 18 Apr 2004 06:26:26 -0700 (PDT)
Please see the linkk below. It explains that WTC Survivor is a hoax
http://securityresponse.symantec.com/avcenter/venc/data/wtc.survivor.hoax.html

See the attached file for details.

Ann-Marie Mrozinski <4ski@...

To: ,
"helen barry hazelton" ,
"Karen Beggs" ,
"Kathy Bonino" ,
"Denise Garrett" ,
"Trudy Bull" ,
"Marilyn Rouette" ,
"Beth Piknick" ,
"Marsh Purtle" ,
"Lauren Johnson Lavender" ,
"Peggy Kilroy" ,
"Cheryl Miller-Lomento"
From: "Ann-Marie Mrozinski" <4ski@...
Date: Sat, 17 Apr 2004 22:09:01 -0400
Subject: [youngwidows2] Fw: please read

dear beth
I am a 52 year old artist who deperately needs to talk to someone
ASAP. I have struggled with this since age 10 and have had "the
works" for treatments. I have never had anyone to talk to about any
of this and thing have suddenly come to a head and I am having what I
term nerve seisures that incapacitate me
My pain dr. said I was in too much pain for him to treat and I have
been searching for a surgeon. My old surgeon was Dr. David Bradford
but he unable to do much at the moment. I have NEVER had anyone to
talk to. As a child Drs. gave my name to kids to talk to but never
gave my anyone. You can read between the lines and know I would love
to chat. Things are progressing very quickly right now anD I am
bedriden much of the time. With deepest gratitude, marti--- In life-

Hi, my names Michelle and I had scoliosis surgery about a year and a
half ago. There is not a day that goes by that im not in pain. I was
having some pain before my surgery but nothing compared to what im
experencing now. I was missing school about 3 times a week and now I
am on Homeschool because I cant sit in school for all of those
hours. I was wondering if anyone else has had the surgery and what
there results were, if they felt better after surgery or they are in
more pain then they were before. Please email me at
xxbabigrl911xx@... because I would love to talk with someone
about this even if you felt better after the surgery. Thank you so

Please read the attached file.

Pls send messsages to me separate than to the group all the time caus I dont open attatchments. and I know you dont eiher. I really benifited from your last info about a week and a half ago. and I really want to keep in touch with you. I hope you feel the same. I am going up this month as soon my special ear nose and throat surgeon gets the x-rays and the cats scans that the docs forgot to send on my first visit to see him. and then I will have the bone tumkor out sometime this month. then my doctor has already referred me to a bone specialist for my Scoliosis and I will see him for the first time in June of this year. So I am in quite a mess but love to get your messages forthey help tmendously.! [INLINE] I also hope to find out what is wrong with my throat and chest the problem is connected for the synptoms and the spectialist thinks I have a second problem in my throat besides my bone tumor. I hope he gets someanswers from the tests he is goin to take when I am u in
Portland for the bone tumor. I am so tired of all these diseases bieng in me and no one knowing what they are in me. Since I have a a doctor who now cares I am hoping it will only take a few mnths to start the process of getting the diagnosis tests under way(so to speak).

Well that is how my life has been forthe last 4 weeks. a nightmare of hell. I just wenet t the ER again last nigh and came home at 6am this mrning. [INLINE] [INLINE] I was only told that my ekg looked ok and that the blood levels were in ok range but he was in very much concern and said that if I still felt that my neck was on fire and that if was hard to swallow w/o alot of pain in the back of where my tongue goes up to swallow and then the pain lingers from there, and my chest still felt that the hea elephant was dancing on my whole chest and rib cage all through from the left side of my rib case to my right rib case that I am to follow thru and see my own pcp. ad I am planingto do so . I just wish I could do so now, but I must try the pain meds first. I must go now cause the pain is too great. thanks for caring so much. pls pray for me. [INLINE] [INLINE] [INLINE] [INLINE] Misteiye
lorenaoregon <lorenaoregon@...

I tried to email this directly to the Coan's email address that is
listed on this board's homepage but it bounced back to me as a failed
delivery.
Are you personally moderating every single message before it is
posted to the message board? It seems that whenever I reply to
someone on the board, it takes a very long time before my message

Your document is attached.

HI all

Just to let you know I will be away for Easter until Tuesday so if possible send me as many emails after then.

Many thanks

Liz

I tried to email this directly to the Coan's email address that is
listed on this board's homepage but it bounced back to me as a failed
delivery.
Are you personally moderating every single message before it is
posted to the message board? It seems that whenever I reply to
someone on the board, it takes a very long time before my message

Welcome, Amber!
The hot/cold sensations could be a number of things. My guess based
on the experiences of many here is that you might have experienced
some form of pinched nerves or a related disk problem. These can
happen in a straight spine, let alone one that is curved and
twisted. This is probably why the Dr didn't seem all that concerned,
because although it is uncomfortable or even painful for you, it is a
common thing. Another, also common possibility, is that it was a
muscle strain.
Your ortho may decide there is nothing that needs to be done about
your scoliosis at this point, but maybe he can get you into some
physical therapy to help you strengthen your abdominal (you wouldn't
believe how much a weak abdomen strains the back!) and back muscles,
and perhaps relieve your discomfort at times. Until you know how bad
it is (the curvatures), whether it is progressing at this time, and
such, it is hard to say what will be recommended from here.
From personal experience, you might be experiencing an increase in
back pain due to stress (husband in Iraq, young child, relocating,
etc). Any kind of stress or illness usually "comes out" most in our
weakest, most vulnerable places, like where something is already out
of whack. Also, you may have strained something without realizing
it. Even weight gain can increase back problems. Is your posture
suffering due to all this stress? So many possibilities...
Many orthopedists and general physicians will recommend that you
spend a couple of weeks on an OTC painkiller like ibuprofen. You can
take up to 2400mg/day unless you experience stomach discomfort or
other signs that you are having side effects or internal
bleeding/irritation. It won't make a difference right away, but
after a week or two, you may see a remarkable difference. Part of
this is because once you have pain, it becomes harder to get rid of
it. It kind of builds on itself. For example, if you start feeling
a headache coming on and you take something for it, you're likely to
get rid of it before it starts, but if you have had a raging headache
all day or longer, it won't go away very quickly even after you take
something. Part of the reason the medication finally starts working
is that it relaxes the muscles and takes the edge off the pain enough
for your muscles to relax even more, which takes the edge off the
pain even more, eventually domino-ing into ending most or all of the
pain. Anything that makes you feel better, even temporarily, will
help to this end, whether it is cold packs, heat pads, tub or pool
soaks, massage, laying with a pillow under your knees (or between
your knees on your side), walking, swimming, yoga, laughing, etc.
A couple of summers ago I strained my back while moving (maybe you
did this, too?) and I was afraid something was wrong because the pain
continued for a few months. I was also getting these awful shooting
pains occasionally when I turned or tipped my body a certain way, but
not consistent with any particular movement or position. Once I
started taking 2400 mg of ibuprofen a day, I noticed a tiny bit of
relief but nearly gave up because I thought it wasn't helping. Every
day was a tiny bit better, and finally in a couple of weeks I
realized I was not in pain and didn't need the ibuprofen anymore. I
had finally relaxed the strain and temporarily dulled the pain out of
my back long enough that it could heal instead of concentrating on
sending pain signals.
Anyway, I hope your new ortho has some good insight and helpful
info. It will at least be good for you to find out how much curve
you have right now so you can track it and make sure it isn't getting
worse over the next several years.
Are you involved with a military family support group? Apparently
you don't live on base, but I think you can still participate with
these groups (they usually have sessions for the home parents while
doing something with the kids, as I understand it), and network for
personal support and even information during this time of
separation. If you don't live near a base or an urban group, I bet
you can find a group online. The military is very concerned about
the welfare of families (it really does affect their soldiers, so
they should) so they support these groups as long as they aren't
spreading confidential information or rumors that might compromise
troop safety or strategy. It might be worth looking into for you and
Brandon. My brother is headed back overseas sometime, too, so I hear
about stuff like this on occasion.
Good luck on all these challenges!
Lorena

Your file is attached.

Hi Amber , My name here is Misteiye, and I am new at having this disease. but I do feel for you. I know I have a windy curve and that I have 2 knots but, I have no idea what the specialist will do. My knee specialist said that he doesnt do backs so he is going to do some discussing to this specialist named Dr. Kitchel and then they both will decide if I need to be seen earlier then June.of this year. I have had it for probably 5 years I am sure of. I hope you are ok with all you suppport and the love you get from your family. Ijust have my husbands family and my 2 almost grown up kids. one is grown up and the other one is almost there. one more year to go.

Well I dont know what to say about the hot and cold flashes but I can see how they could throw anyone. U r doing just fine. just hang in there. I am sending lots of love and hugs floating from my home to yours. l will write t you again soon. good night for now. Misteiye [INLINE]
Amber <ambgregg@...

Hello, I just joined the group and I am so relieved to find a
support group that is actually pretty active. I looked on MSN but
none of those groups are very active. But anyway, a little about
me. My name is Amber, I am a 26 year old stay at home mom to my son
Brandon who will be 5 next month. I have been married to hubby for
almost 6 years now and he is in the Army. He is currently deployed
to Iraq for a year. I'm staying with my dad while he is deployed.
Hoping he'll be home in January but with the military you never
know.
I've known I've had Scoliosis since the age of 14 when I went for a
cheerleading physical. But have not seen a doctor for it. When I
was about 20, I was having severe back pain and had a big bump on my
spine. Like a goose egg. So I went to the ER. They xrayed me and
the doctor asked me if I knew I had scoliosis and have I ever been
to see anyone for it. I said yes I knew, but never been to the dr.
He said I should go because my lower spine is curved and twisted.
But I never went.
Fast forward to about 3 weeks ago. I was sitting down on the couch
and was about to get up when I started having hot sensations in my
lower back, not just the spine area, but from one side of the waist
to the other. I got up and went to bend over and I had sharp pains
in my back. Then the hot sensation went to cold, then hot. Kind of
like it was going to go numb but no tingling. Then it slowly worked
it's way up to my neck, my upper arms, and in my belly. Now I was
beginning to get worried. I thought for sure my back was finally
giving out on me. So, I decided to go to the ER. While I was
waiting for my mom to take me, it started in my upper thighs and in
the bottom of my feet. I got to the ER and went to the restroom and
was trying to see if I could pinpoint where the pain was coming from
and it was directly on my lower spine where it's curved at. Well, I
waited forever in the ER and finally got seen by a doctor. I was
surprised that he did not seem to think it was serious. He did not
even xray me. He just gave me a prescription for pain meds and
muscle relaxers but he did say I should go see an ortho. So, I go
on the 14th of this month to an ortho. And I got lucky and found
one that specialises in backs.
I've been wanting to do something about this for a long time. It is
just getting worse. Even since I moved in with my dad 2 months
ago. I cannot sit or stand for long periods of time. If I go to
sit down it hurts, if I go to stand up it hurts. I cannot win no
matter what I do. I am too young to be feeling like an old lady.
And I do feel like an old lady.
Thanks for "listening" to my story and I hope to get some great info
and maybe even make a few new friends here.
Can anyone explain the hot/cold sensations I was having??? It is
weird to me, never happened before.
Hugs,
Amber
Thanks to my entire family for standing by me and helping me sort out this computer stuff.
And most of all the person upstairs. He has helped us through many hard times as he will anyone.

Hello, I just joined the group and I am so relieved to find a
support group that is actually pretty active. I looked on MSN but
none of those groups are very active. But anyway, a little about
me. My name is Amber, I am a 26 year old stay at home mom to my son
Brandon who will be 5 next month. I have been married to hubby for
almost 6 years now and he is in the Army. He is currently deployed
to Iraq for a year. I'm staying with my dad while he is deployed.
Hoping he'll be home in January but with the military you never
know.
I've known I've had Scoliosis since the age of 14 when I went for a
cheerleading physical. But have not seen a doctor for it. When I
was about 20, I was having severe back pain and had a big bump on my
spine. Like a goose egg. So I went to the ER. They xrayed me and
the doctor asked me if I knew I had scoliosis and have I ever been
to see anyone for it. I said yes I knew, but never been to the dr.
He said I should go because my lower spine is curved and twisted.
But I never went.
Fast forward to about 3 weeks ago. I was sitting down on the couch
and was about to get up when I started having hot sensations in my
lower back, not just the spine area, but from one side of the waist
to the other. I got up and went to bend over and I had sharp pains
in my back. Then the hot sensation went to cold, then hot. Kind of
like it was going to go numb but no tingling. Then it slowly worked
it's way up to my neck, my upper arms, and in my belly. Now I was
beginning to get worried. I thought for sure my back was finally
giving out on me. So, I decided to go to the ER. While I was
waiting for my mom to take me, it started in my upper thighs and in
the bottom of my feet. I got to the ER and went to the restroom and
was trying to see if I could pinpoint where the pain was coming from
and it was directly on my lower spine where it's curved at. Well, I
waited forever in the ER and finally got seen by a doctor. I was
surprised that he did not seem to think it was serious. He did not
even xray me. He just gave me a prescription for pain meds and
muscle relaxers but he did say I should go see an ortho. So, I go
on the 14th of this month to an ortho. And I got lucky and found
one that specialises in backs.
I've been wanting to do something about this for a long time. It is
just getting worse. Even since I moved in with my dad 2 months
ago. I cannot sit or stand for long periods of time. If I go to
sit down it hurts, if I go to stand up it hurts. I cannot win no
matter what I do. I am too young to be feeling like an old lady.
And I do feel like an old lady.
Thanks for "listening" to my story and I hope to get some great info
and maybe even make a few new friends here.
Can anyone explain the hot/cold sensations I was having??? It is
weird to me, never happened before.
Hugs,
Amber

Note: forwarded message attached.

[INLINE] GOTTA BE ME [INLINE]

HI Mike

Thanks for your advice about the easy to install firewall.

I purchased the McAfee CD a few weeks ago, but uninstalled it as the firewall wasn't updating. I then purchased the zone alarm firewall from the internet which I found a lot better. It took me ages to uninstall the firewall of McAfee however and I still get a message at start up that the McAFee hasn't been installled properly, don't know how to delete this!!

I do still find that I am getting viruses, I have the AVG virus checker. I also have a tool installed from the internet for the Netsky and My Doom worms which affected my computer, so at least I don't get the worm now, don't know how I get the viruses however, I have Outlook Express 6 and I use a spam filter from the zone alarm.

Thanks again for your advice.

Liz

Sounds like you are on the right track, Liz!
A router is a device that allows you to operate more
than one computer on the same cable/dsl line. I don't
think it works for dialup connections. Most routers
have a built-in firewall that is a great backup to
your ZoneAlarm firewall. So, if you are on cable or
DSL, you might want to look into getting one, even if
you have only one computer. It's just added security.
Mike

I am so sorry your doctor took that type of opinion with you. it is
enough to try and function with the problems scoliosis can hand you,
without a Dr. that has no compassion. When I started to really
having a lot of trouble breathing, my regular Dr. sent me to a
pulmonary specialist, who immediately suggested I start preparing to
quit work. My S shaped curve was interfering so much with my lung
function, I had to start on a concentrator with sleep and exercise
that same day. Well since the pain in my back, and shortness of
breath,prevented me from any exercise, it meant mostly sitting with
a oxygen canala in my nose from then on. That was 4 years ago. I am
60 yrs. old by-the-way. I did have some good years when I was
younger, but after 45, it all went down hill. I really don't think
the surgery, ( which they didn't have when I was young)would have
really helped me that much. Good luck to all you young people that
has the disease, it's a real challenge.
anne

Hi Darious,

My name is Yin Hoe. I also have a thoracic curve and I had gone for surgery 6 years ago where they fused part of the spine inserted titanium rods to hold it in place.

After which I suffered from occasional numbness on my limbs and my head, which seems to be getting worse. I also have headaches and lightheadedness. I consulted a chinese physician and she says my numbness is caused by the instrument and my bones pressing on the nerve endings at my thoracic. The headaches were due to the awkward positioning of my cervical spine, possibly caused by my scoliosis or sitting posture.

Hope this helps.

Regards,

Yin Hoe

Hi Darious!
My headache is on my forehead.
Regards.

hi,
I'm very happy I've joined this group,I'm 22 years
old, my name is Darious , and I have a C shaped
thoracic scoliosis(30 degrees to the right). For about
one year, I have been suffering from a pain in left
side of my face ,mostly in my left ear.Its really
worst than my back pain and I can't concentrate on any
thing. My physician says I might have some jaw (TMJ)
disorders.I want to know if any one else has some
similar pain and could it be the result of scoliosis?
I really need your comments.
Sincerely,
Darious

I wore a brace when I was 13-14. If I can be of any
help at all, let me know. It was tough. I felt like
an outcast, but it all worked out ok. I had surgery
when I was 15 because the curve had progressed to far
for bracing. I feel for any kid who has to brace. It
sucks, but you get through it. Also, find a
seamstress or someone who can alter blue jeans. It
goes a long way to "cover" the brace.

=== message truncated ===

Great letter Lorena!

Sherry

Hi Mike, thanks for the encouragement of the last
message. I did not know how far I was even coming, but
what you have told me and the timing is perrrrrfffect!

It sounds as though your GP is of the "stiff upper
lip" category. The only osteopathic surgeon who
examined me when I was a kid was similar. He had been
a Navy surgeon on a hospital ship at Tarawa and
brooked no sympathy for slackers of any type, be they
Marines shot full of holes or pimply faced teenagers
with curvy spines. At the age of 13, of course, I
just ate that up and forged ahead. If I heard that
sort of garbage now, I would be right upset, as you
are. I believe that it is in the mindset of some
physicians that no matter what, the patient must
disregard pain and discomfort and pound his or her
head against the wall until unconscious. Then, and
only then, would there be any consideration for
lightening the load .. and perhaps not even then.
Would a change of GP be in order here? Or are you
bound to this one?
Mike

Hi Liz this is Misteiye, I am sonewabout this scoliosis disease that it sounds like a really hard fight yo and your doc are having in the way of differences of methods of treating you. I will ,though, keep you on my deepest prayers. Hopefully, there will be someone in this group that will know ho to help you to attak this problem and win. [INLINE] til then May you have the Lords Love and Care and may you are being watched over by all up aboce angels and earthly angels. I love and deeply care for you. LOVE Misteiye

PS. I dont open attatchment mails. so just send me the same mail from you to me but nt to anyone else. I will respond and Iwill usually write back unless I am in th hospital.

::):):):):):):):):):):)
liz <piglet28266@...

I came out of the surgery today in tears after visiting a GP..

I have been suffering from puffy feet and a very sore ear for the last couple of weeks and have continued going to work throughout.

I suffer from scoliosis, wear a ventilator to keep my oxygen level stable during sleep.

I asked the GP if I still could go to work, I have also been suffering from an earache which he said maybe due to the jaw! He told me to increase my water tablets and still push myself to work to forget about it which I thought was totally unsatisfactory.

Over the years I have been to work with serious conditions like blue lips and a rod sticking out of my back.

I am 38 years old and have recently reduced my hours slightly at work to 9 am to 3 pm as I couldn't cope with a full day. I still feel extremely tired some days.

What would you suggest I do to receive more understanding from the GP.

Many thanks

Liz

I'm glad you are finding out more about your
condition, even though it may have been something of a
shock. It's better to be informed than not. I think
women have a tougher time with scoliosis, especially
with the hips. My hips are so narrow that when I
sneeze, my pants fall down .. almost! So, one side
being higher than the other isn't such a big deal.
The rib cage being higher and larger on one side can
be a problem, especially when all there is to sit on
is one of those hard-backed Shaker-type chairs. I
just cannot sit on one of those. If I had a bunch of
munchkins gamboling about, I think I would probably
blow my whistle once in a while also. You have come a
long way already, and I am sure that your
perserverence will pay off and you will find some
relief.
Mike

I came out of the surgery today in tears after visiting a GP..

I have been suffering from puffy feet and a very sore ear for the last couple of weeks and have continued going to work throughout.

I suffer from scoliosis, wear a ventilator to keep my oxygen level stable during sleep.

I asked the GP if I still could go to work, I have also been suffering from an earache which he said maybe due to the jaw! He told me to increase my water tablets and still push myself to work to forget about it which I thought was totally unsatisfactory.

Over the years I have been to work with serious conditions like blue lips and a rod sticking out of my back.

I am 38 years old and have recently reduced my hours slightly at work to 9 am to 3 pm as I couldn't cope with a full day. I still feel extremely tired some days.

What would you suggest I do to receive more understanding from the GP.

Many thanks

Liz

Liz,
Have been going through about the same with me GP, basically telling me that
my pain all in me head -- I have and I would suggest that you find another
one, it my be hard to find one that really understand what is going on, and
how much pain are in -- but they are out their.
I also had pain in my ear last time I went to my GP, he looked at it, told
me that there was nothing wrong it -- I then went to ear specialist, and I
am going in for surgery next friday!!
Hopefully you will be able to get things figure out soon.
Good Luck,
scott

Hi Mike, I might still ask another doc, it depends alot on my insurance. out here we have wacky insurance. and it is always getting more and more limited. we used to be able to get eye appts more than 3 years apart but now only the kids under 18 yrs can get them every half a year. so we shall see. My own doctor is also a specialist in intenal medicine so I am very blessed to have 2 in one. I have had the opposite all my life but now I am finally getting blessed. but alot of the past is my own dead folks fault. they tod me all the time Iwas a mistake and said they did not want me and let my gandma raise me until we had to move out of Oregon(where I now live). but that is all in my past. Now I have a now husband and we will be married for1 year on April 8th 2004.! [INLINE] and he has something up his sleeve for that day. I will find out that day.

Well that is all for nkow. pls write again . it is 10:10pm now here and I need to eat some dinner. [INLINE] I will look forward to seeing more notes from you. I appreciate all I can get. I am a babe about this disease. bye for now. Misteiye
Mike <haolemike@...

If your physician did well with your knee, then that
is a good sign. Knees are pretty tricky. I have
blown out both knees, but due to my conservative views
about surgery, I opted for long-term bracing rather
than surgery. If your scoliosis is giving you misery,
then surgery might be the best alternative. I have
been lucky in that my big ol' S curve hasn't hampered
my life too much, and the pain is intermittent. So,
my conservative instincts have kicked in with my back
as well. Believe me, if I were severely hampered with
discomfort and pain, and surgery could fix it, I would
do it in a heartbeat. I still think that anyone
contemplating surgery should get at least three
opinions, though.
Mike

Hello Mike I just found ut alot from a neighbor /frind about the
Scoliosis. I wasfloored when I found out that I was born with it. I
now know that I havae having pinched nerves all along and that I have
been having muscle spasms for many years and its just the trauma from
the last 5 year, and I am just now beginning to think about all of
the hard tomesand sorting out them out ot if they were just hard days
cause I had to get my kids off to school as a ssingl parent who loves
my kids or if that was the day of one of the incidents of my
scoliosis and having a pickle of a screaming day when my kids were
out ofmy ears screaming range. I dont swear but I do scream really
loud!!! and I only do it when I dont have people in front of me or I
warn then to plug their ears. I dont like them toduffer just cause I
have to.
Anyws; I am so shocked at what I found out i fits me to a tea a
to the info my friend to me tha she has and what she knows about it.
her scoliosis is lots betterthan mine but atleast I nkw know what may
be going on in Aprl or on the 31st of this mo. may have a surgery
of having 2 rods put into my back. tok strengthen it. and maybe turn
the curves in my spine. One of my legs is lower han the other. ad one
of my rib cages is much higher than the other. and I have no clue
what that means for my hips. that iwhere mos o the pain stays with
where a blt is supposed to go that is where the pain gos constantly
w/o a break. Well that all gor now. shat with you another time.:)
Misteiye

THanks for the advise Mike. this is Misteiye. I have an appoi ntment on the 31st on this month and he will ask me all sorts of questions and then tell me to go to the hosp and take some tests to see how severe it is. He already has xrays of my whole body. and he will probably take a MRI and a CatScan. That is all that is all I can think of all will help him. I am just guessing will happen to me. He did some therapy with a brace on my knee first and then it required surgery and now it is in really good working health wome days and soso other days. so I dont know I think he will use a brace on my back first. what do you think of that? pls be honest , I ant your input.

PS.I dont open attatchments becouse of the viruses and the strengths they have that even the norton anti virus cannot kill. so I will be glad to communicate back and forth but not in attatchments. bye for now. I am looking forward to our next info time. and it helps my husband-Russ too. He is in a worry wreck,. misteiye... [INLINE] Mike <haolemike@...

If possible try to get at least two more opinions from
two other doctors. Surgery is not to be taken
lightly.
Mike

it is 2:35am right now, but I will type more tomorrow.
I did want you to know that I did recieve your
message,though.
However, I do not open attatchments because the
hackers and others like them have created viruses so
potent too strong to be killed by my norton antivirus
I khave installed. So I am ok now but I dont want to
take any chances so I will welcome any mail that comes
without attatchments.:)
I dont know anything about this scoliosis and I
suspect that my suspect he will put me into a brace to
start with. from then I khave no clue. any clues you
have will be a help. bye for now. Misteiye
:):)
=====

If possible try to get at least two more opinions from
two other doctors. Surgery is not to be taken
lightly.
Mike

My daughter, 14 years old, is with diagnostic of scoliosis. X-ray
exam shows 41 degree curvature. Physician in the first visit had
recommended surgery. What do you think? Could be better to intent
first a more conservative approach based on braced and exercises as
yoga or pilates? Or may be more reasonable to monitor some month
evolution of curvature and do nothing if it is stable?

Dear Members of this group. this is Misteiye. I had the name
Nikajh, but decided to change it due to the recent info of hackers
getting into my conputer and many of my friends too. Even the Norton
Antivirus could not stop this one. So I had a special Antivirus
stopper put in and now I dont open any attachments. I dont know who
is who now. If you want to send me a regular message w/o any other
name attatched I would be more than thrilled to get them for I really
do need the encouragements now;as I am going thru such a uncertainty
of what the docs will do next beside the one bone tumor in April
that is growing on my lower right jaw and is benign. I am still a
newly wed until April 8th of this year. and we are looking forward to
doing something wonderful. MY husband named Russ has a surprise for
me and I dont want to guess I just want to have the delight in
finding out on that day. however I may be in the hospital. only God
knows right now.
I am a 40 year old woman who see hreself in a trap inside our
apt. not able to do much and am looking for a way to find a comminity
of the deaf so I can spend lots of time with them since I grew up
with them cause my sister is totally deaf and she relied on me for
everything. I khad a blast raising her. She and I are still so very
close even though she is in Idaho and I am in OR. My first language
is American Sign Language and then regular English and then British
and then some slang british english and I still have my British
accent,even though I never got to go there and live there. but I did
get to stay in Canada for a short while. I enjoyed it so very much!:)
I love to use my time wisely if at all possibly when I can
think well enough. I also have been told I have
fibromyalgia,asthma,and I have had epilepsy since the age of 7 and
now besides the tumor the scoliosis. that one frightens me cause I
know nothing about it at all:(
I am still able to walk around the house when it is a sunny day
and I dont need my forearm crutches as much as before I had my knee
operated on . I get really weak after my knee therapy and then I walk
too much and then I have blisters on the bottom of my feet. I also
have home exercises to do since the incurance wont pay for expert
therapy unless I have surgery on my back first. I think the
specialist will put a brace on my back and front to start and see if
that improves any of the twisty spine and upper right too hight of
rib cage and also lower my hips that are way our of wack. then I
think he will go to surgery. and then I will be able to send me to
the pro therapy, for at least 5 or 6 times a month. Ihave no idea if
he will do any tests but I would guess a CT Scan or a MRI would to
the trick. He already has the complete bone exrays from my head to
toes and even my face bones.
So ou see, I hope that I am in a pickle in trying to feel calm
and collected and trying to tell my Russ how I feel w/o hurting his
feelings wince he is only the helper/supporter who lives with the one
who is suffering with so much.
He is suffering with hernias and the last count was 16 but they
wont remove them simply because they appeare when he eats too much of
a fatty kind of food and when he stops eating that food that hernea
goes away back into his gatty tissue. they are all above his belly
line,instead of below. he has had surgery before when they were
outside and below but now they ar no threat to him so the docs dont
believe that nothing needs to be done yet except keep taking his new
meds. So far they are working.
He want me to leardn to drive again and so Iwill be studying
the pamplet soon, pls wish me good luck and blessings. I have not
driven since I was 18 yrs. old. I do believe that I can it. I just
need a lot of encouragement. and lots of practice. We have a high
school near by so I will practice there an on the freeway after I
feel good enough.
Well I do believe I have talked your ears off and you have a
lot to think about. Pls remember that I dont open attatchments. Pls
write to me one at a time and I shall do the same.
I am usually on from 10pm or 11pm til 3amor4am Pacific time.
I care for this group and I Love you all Misteiye...:):):)

Hello, My user name is Nikajh. I found out last week that I have a
bad case of Scoliosis. My doc is a specialist in internal medicine
and he did some tests on me and found out that my right rib cage is
way too high and my back bone is really shaped like a tight s and my
hips are out of wack and that I am in a mess. He gave me some
exercises to do at home since my insurance wont pay for any therapy
unless I have surgery, then I can have therapy. so I tried the
exercises but all they did is pull the muscles and made them hurt
more and so I call the office like he requested and now I will see
the specialist I saw before to fix my knee and this specialist will
probably put me in a back brace.
I have never had any such thing and I have only had a brace on my
knee before I had surgery on it and it is fine now. But I have not a
clue what in the heck this is all about. I feel like I am in the
dark.
Pls help me. I know more about my fibromyalgia and my epilepsy and
asthma. However, I know nothing about this disease. Skoliosis is such
a frightening word and since I dont even know anything about it I am
wondering what I should do first. pls help me all you can, anyone
will do.
I have a tumor and will be getting it out in April some time after
the 5th. in Portland. I live in Eugene OR. I am prepared for that
one. It is benign and is still growing so I am going to have it out.
I will first have a consultation and I will have the actual surgery.
Now a little about me; I am 40 years old. I have a wonderful
husband whose name is Russell. We will be married 1 year in April,on
the 8th 2004. I have 2 kids that are 18 and 17 and my daughter is on
her own and lives in Creswell and my son lives in Junction City. they
both see us from time to time. I have a mother daughter time once a
month with my daughter-Malia. and we see our son when he is allowed
to have a home leave. I have a pet cat named Tiger and I love to
color with color pencils and I love to sew..crewel,cross
stitch,embroidery,ribbon embroidery,japaneze embroidery,and I will
soon learn tatting. I like reading too.I like to walk when my body
permits.
If you have any questions pls ask away. I love to chat too. I am

Hello Everyone, My name is Russell Brenchley and my wife Bethanne
and I just found out last Wednesday the 3/10/04 that she has
Scoliosis and I am trying to find a support group plus also some more
information on how to help my wife, especially when it gets so bad
that she can't even get out of bed. At first the Dr's thought she
had Fibromyalgia and for a year that is what they treated her for.
Now her new Dr has diagenoious that it his a case of where her first
Dr missed the whole thing and redigenous her pain as Scoliosis. So
as you can see I am at a lost and am in need of
information,Treatment,Medical Help, Medicine, Ect. Thank you for
letting me join this group plus vent out in asking for HELP?!.
Sincerely
Russell C. Brenchley

Have your thyroid checked; it is one of the most
overlooked causes of unexplained fatigue.
Mike

I went back to the Dr again on Monday evening as it is a month since coming off my water tablets.

I have now been told to go back on my water tablets and blood pressure tablets again as my legs are very swollen, I am having difficulty in walking, I have been going to work.

I am still feeling tired, but was told that it couldn't have been caused by the water tablets as I have been taking them for years.

I have scoliosis, do you know what other problems may cause tiredness also what may be causing the water retention. I use a nippy ventilator at night.

I look forward to hearing from you.

Best wishes

Liz
x

Hi

Can you let me know why I receive a message 504 Timeout error, when I go into the Virgin phone website? I can't get into certain parts of it.

I have the AVG virus checker and zone alarm firewall, cookers are allowed in the zone alarm firewall.

Many thanks

Liz

The free versions of Zone Alarm and AVG do not update
on a daily basis. You are lucky if they update once a
week. They are not as comprehensive as the pay
versions and therefore are not as bullet-proof.
During this latest round of virus propagation, McAfee
has been updating just about once a day, and sometimes
twice a day. If you don't stay one step ahead of the
low-life cretins who write these viruses, they will
ding you for sure. It all comes down to: you get what
you pay for.
Aloha, Mike

I have both the zone alarm firewall and AVG virus checker, however when I ran a virus check on my computer this evening the Netsky virus had got into my system so I had to delete it through a website.

How would it have got into my system when I have both the Zone Alarm and Virus checker?

I look forward to hearing from you.

Many thanks

Liz

Must you go to Baton Rouge to get treatment for the copes rogram?

Does anyone know if there is a website that is about doctors rights and patients rights?

KATHRYN BLAIR [INLINE]

msn messenger: hpblair@...

im on the copes program. look it up at scoliosis.com.
so far within a yr my curves decreased prob by 20% im going to try
rolfing and bowen technique.. look at all the alternatives. i have a
website with alternatives.. its on my other comp ill post it some
other time.

The file in question is a new virus that just started a couple of
days ago. DO NOT OPEN .PIF files that say "read me" "please read"
or "here is the document you requested". It is a worm.

Please can you tell me whether this is true? I didn't open the attachment!

Have you sent me a message to say my account is temporarily disabled? I received this message with an attachment which I didn't open, the message was from co.uk. I couldn't send a reply back.

I received two further messages with attachments on them.

Please advise

Many thanks

Liz

This girl from chat asked me to email you and request that you meet her online
at this link.
http://www.daterswanted.com/landing.asp?afl=NNNN
She looked really hot so I'm sure the two of you will have loads of fun.
-Good Luck!
.
.
gpdzedjss r emqy cnzvto liyzrznbyifo yigmgtmjx lbli
goirrlmg p

I am not sure what's going on here. Posted an introduction and it was returned.

Hi Liz,
You may be interested in the pulmonetic LTV series vents.
http://www.pulmonetic.com/ I tried one. Worked great - light
weight; and runs off battery or AC. Battery life is about half of
what they claim. They are available world wide. G

You can try an uninstall/reinstall. There should be
directions for that online at McAfee's website.
Aloha, Mike

I am trying to update my McAfee software, version 5 Firewall Plus but am unable to do so. I tried to email a representative but get the following message:

Microsoft OLEDB Provider For ODBC Drivers Error 80040e14

I am using Outlook Express 6.

What do I do now?

Liz

Gosh, I don't know Liz. Have you not been using an anti virus? I wish I could help you. There was a site I went to when I was on msn, that answered questions concerning computers. Good luck with it.

Ya friend,

Anne

liz <piglet28266@...

Hi

I am getting the following message when I do a scan on my computer,

files infected ATTIB2.eml

Virus: W32/Mydoom.a.em/zip

How do I delete this virus

Thanks

Liz

Hi

I am getting the following message when I do a scan on my computer,

files infected ATTIB2.eml

Virus: W32/Mydoom.a.em/zip

How do I delete this virus

Thanks

Liz

HI

Just to let you know I had the My Doom virus on my computer when I did a virus check this evening.

I had to download the "Fix my doom" from an internet site as my virus checker couldn't remove it.

Thought I'd warn everyone even with a virus checker you can still get caught with the MyDoom virus. I have now also installed a firewall on my computer.

Best wishes to all

Liz

Hi everyone,
On the last email I posted, There were 3 attachments of images.
I want to know how many people can feel in the centre of there back what
feels like the the picture I last attached entitled Etiology1.
Thanks from Scott

Hey Lorena,
This might make more sense.
Pictures are better.
This is what happened to me.
The last pic I took from my Windows Media Player.
Its not very technical, but you can see what I mean about 4 sections 3 axis
From Scott

Hi Lorena,
Thanks for your reply.
I not sure these laws have been proven adequetly with scoliosis.
If they were professionals would have to remove the term idiopathic.
Now when I say "injury" I have to define exactly what I mean.
I am refering to asymmetrical forces on your body creating altered
interverterbral mechanics.
The very first point at which altered interverterbral mechanics were
originally created.
When I say injury, I do not mean that any object touched to body, or that I
slipped over etc.
Simply put - the original misalignment of interverterbral mechanics.
So when I say injury, I actually mean idiopathic scoliosis anyway, because
the spine must be corrupted for interverterbral mechanics to work against
each other.
What I understand, is like a mathematical formula to track the dynamic
system of decompensation (Scoliosis progression)that was created by the
original misalignment.
I understand this system well enough to adhere the principles to all curve
patterns,because the location of the original misalignment determines the
curve pattern.
What I understand is like this - X+Y=Z in relation to scoliosis
progression.
Nobody else on the planet understands this.
I alone hold the keys to change history, but I cant complete what I started
alone. I realise I need help, and I havent been able to get it. The larger
Scoliosis Organisations dont seem to want to assist me to the point of
proving or disproving my work.
Your Question - How does this occur in nature (as opposed to accident or
injury
Ok Lets ask ourselves How does the spine become corrupted ?
Think of the natural curves of the spine, and the junctions of these curves.
You have cervical lordosis, thoracic kyphosis, and lumbar lordosis making up
the natural curves.
Think about what makes a curve. (a curve is defined by having a starting
point and its end point)
Logically, the original misalignment should occur at the start or end point
of these natural curves.
My injury divided central thoracic. and created a formula consistent with -
4 sections 3 axis's
Once this first misalignment occurs, the stretch and unstretch created
cannot divide evenly back into the other natural curves. Scoliosis is a
dynamic system of decompensation.
Researchers have identified 12 curve patterns.
This is consistant with the mathematics 4 sections 3 axis's
Now I bring to your attention an abstract Scoliosis in an immature goat
model.
www.jbjs.org/ORS_2001/pdfs/0943.pdf
You will find if you read this article that scoliosis is mechanical and can
be created.
Moreover what is interesting is that there studies were inconclusive untill
they performed the rib resection. In regards to my scoliosis research, I too
blame the ribhead for moving into a compromised position, which allowed
misalignment of the tilt, slide tilt sytem of facet joints in motion, by
creating a concave and convex in the one movement.
You also asked how this info can help us.
I myself dont condone any alternative treatment. Moreover I think the answer
lies in a combination of many, together with understanding the mathematics
that make progression possible in the first place. Firstly if what I am
saying can be tested and proven, here are the benefits
Create a complete and mathematical understanding of all curves patterns
Instead of reading about scoliosis you can watch scoliosis progression
simulated on your PC, in your own curve pattern. With this knowledge based
on sound mathematics an effective treatment can be created to reverse
scoliosis progression non-surgically.
There is no evidence to support the fact that scoliosis cannot be reversed
non-surgically.
In fact scoliosis has been effectively reversed non-surgically in mice.
Harrington did it in the sixties.
My research shows which buttons to press mathematically and in what order to
effectively be able to reverse it. Remember X+Y=Z
Thanks for writing,
From Scott

I was advised not to open this attachment, due to virus!! I don't even know the person

From: Julie Dean

So what did you have to do to get disability?

Yeah ... that is really annoying! I don't know if
that problem can be solved in your Outlook Express. I
know that some of my correspondents finally were able
to send pictures to me when they changed email
providers. If you find a solution, please let us
know!
Mike

I have been fighting to get my scolosis to be seen as a disability for almost 2years. It was considered disabling when I wasw a child, but as an adult they wanted to fight it but they did end up deciding I was disabled. It is not easy but keep up with it. I still have surgons telling me that scolosis does not cause pain...I don't understand how they can look at what it does to our bodies and say that.

Karen

Hi

I wonder if anyone can help me.

Hello All!
My name is Michele and I am a 39yr old Female, that has had 5
children. I was diagnosed with Scoliosis at approx 12yrs old. At
that time I was told that I had completed growing and bracing would
do no good. I have been told that my curvature is minor and agree
considering the information and other people that I am finding have
more severe degrees.
I have pain everyday of my life with no relief. My insurance company
does not acknowledge "PAIN" as a disability! They only accept
objective medical information supporting disability and since
Scoliosis alone is not considered a disability, I am finding it very
hard to get any support and acknowledgment of my pain!
During my menstural cycle, I am laid up for 5 days at the minimum. I
have used way over the maximum amount of time for Family Medical
Leave and receive no assistance from my provider, other than being
told to excercise (which I do when I am able)! They continue to give
me narcotics and then I am told to watch myself for becoming
dependable on my pain meds. I am also on anti-depressants, for many
reasons, including the pain I deal with on an everyday basis.
I made my Dr. xray by back to find out if my scoliosis has progressed
and they found an additional curvature, but attested that to the way
I was laying! (hahaha wasn't I supposed to be being tested for my
posture and any changes?)
Any help or advice that I can get would be very helpful!
Thanks!!
Michele

Hey,

I'm from Singapore too.. had my operation back in February 2003, more details are on my website http://snap.meappy.com/spine

How do I join this group?

Regards,

Gerald Sim

Hi,
We are seeking to establish a scoliosis support group here in
Singapore to help patients cope with the condition better. We are
currently working closely with the Singapore International Foundation
and Health Promotion Board to see what can be done.
We know that bringing the patients together to talk about their
conditions and their own experiences in dealing with it helps in
providing comfort and relief (as proven by the function of this very
website ), but we are not sure how such intimate discussions are to
be conducted: who should start the ball rolling and how; what
materials are commonly used to lead into the spontaneous
discussions, which will be constructive in bringing emotional relief
to the patients?
This is especially to adolescents, who are very self-conscious, and
tend to keep their pain or discomfort to themslves, in pretending to
be 'normal'. This group of patients would not be motivated to seek to
know more about their condition, and are in a sense left out from our
warm sanctuary on the Web.
Has anyone been through such sessions before? I know that Scoliosis
Association UK is doing this with its members.
As this project is still at its infancy, we are eagerly looking for
individuals who believe strongly in our cause to join us to see this
dream through to success.
We need support in every possible sense, especially from fellow
scoliosis sufferers. If anyone is interested in helping us out,
please join us at this address:

Hi Liz. Go to www.microsoft.com/security. They'll help you out. Des

Hi

I wonder if anyone could tell me the best virus protection to use on the computer. Is it possible to have a firewall with it too, my antivirus protection doesn't include a firewall. Is the antivirus and firewall easy to install? My partner used to do all the installations!

I look forward to hearing from you.

LIZ

Joke sent to me which I thought was funny!

Paddy sees a sandwich with two wires coming from it, and phones the police to report a bomb. The office asks if it was ticking. Paddy says "no I think it was beef!"

Liz

See - I told you no-one cares

Hi Tan,

I' ve met with a patient who had the rods in her 36y.o, (S shape 45 degree), now she is 40 years old and she removed the upper part of the rods last Sep. and the lower part last month, she feels better after removing her rods, no pain killers to take and flaxability is getting better.

Hope this would help.

Heba
Tan Yin Hoe <rainshoots@...

Hi,
I went for a Scoliosis Operation close to 6 years ago
when they discovered curvature of my thoracic vertebra
to be around 40 degrees. This was after regular visits
to the Schools' Health Clinic, which failed to inform
me of my deteriorating condiion when the curvature was
still small and not fatal enough to call for an
operation. Neither did they offer any advice on the
possible remedies which I could explore to mitigate
the condition, so I remembered. Me and my family were
obviously overwhelmed when they finally broke the news
of the need to refer me to a Specialist, who
subsequently recommended an operation.
My appointments with the Specialist were short and
pragmatic. He did not inform us of any alternative
therapy to my condition, and insisted that operation
is the sole solution. The fact is, I was not even
adviced to wear a brace at all. Neither had we been
told about the possible side effects as well as risks
of having the operation. To us, it was a 'live or die'
decision, for we had not been given room to carry out
any discussions with the Specialist. Confused as we
were, we had been compelled to make an unpermeditated
decision to go for the operation. Even then, the
Specialist postponed the operation 3 times because of
his trips overseas, which made us utterly uncertain,
not to say anxious, of when exactly the operation
would take place.
After a delay of about a month, the operation date was
at last finalised, but that was impetuously in less
than a week to the operation date itself. You could
imagine how unsettled and reluctant I was when I went
for the operation. Yet that was my only lifeline, my
only chance of recovery. If the curvature were to
worsen any further, my lung capacity will be affected
and risks during an operation then would have been
much higher. They inserted the Harrington Rod,
accompanied by spinal fusion at my thoracic spine and
corrected the curvature to 20 degrees.
Today I live with frequent aches at the thoracic and
lumbar region of my spine, especialy during the wet
days. The pain is most severe at the portion close to
my left scapula (somewhere at the back of the heart)
where the spine is curved to the left and the rods are
inserted. I also experience lightheadedness and
irregular heart beats from time to time. Doctors
prescribed painkillers and muscle-relaxors for my
backache but this is definitely not a long term
solution. Chairs in the office that do not encourage
good seating posture aggravate the pain.
I seek your advice as to how I should overcome these
frustrating side-effects of my surgery. Some chinese
physicians claim that they could have eased the pain
if not for the foreign object in my body. Would
removal of the rod help in anyway?
Its been tough trying to overcome all the apprehension, pain and fear
associated with Scoliosis and I am really glad to have chanced upon
this web-site. In fact, I am thinking of starting a similar self-help
support group over here in my own country.
I would certainly like to hear your story too and perhaps it may give
me some ideas that may help me in my humble aspiration.
Thank You.
Yours Truly,
Tan Yin Hoe
from Singapore
Thanks to my entire family for standing by me and helping me sort out this computer stuff.
And most of all the person upstairs. He has helped us through many hard times as he will anyone.

Hi

Just to let you know that there may be problems with sending emails to people if you use certain subjects.

I was advised on one of my emails not to use "Hi" in the subject heading as there is a virus going around and the computer receiving the message might reject it with this heading thinking it is a virus coming in.

I don't know whether other people have had similar problems, and thought this might help in sending emails.

Liz

Hello ,
Sirajullah has forwarded the following email to you with this message:
If you would like to subscribe to this email, click here.

To view this email as a web page, go here.

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January SpineNews

Spine-health Features

Healing benefits of yoga

Modern lumbar spine fusion

Illustrations of Spinal Anatomy

Spinal Anatomy and Back Pain

Facet joint disorders

Cervical herniated disc symptoms and treatment options

Understanding cervical spondylotic myelopathy

Bone spurs and back pain

Treatment options for a lumbar herniated disk

Degenerative disc disease--nonsurgical treatment options

Reader comments

"I would like to thank you for your accurate information. With your information I don't sound like a dummy when I see the doctor. Also, I can find out what the doctor is talking about by researching your website."

"I recently found your website and really appreciate it. There's a lot of junk on the Internet and it's a pleasure to see physicians stepping forward to provide accurate information."

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Inside Your Spine

Spinal anatomy is a remarkable combination of strong bones, flexible ligaments and tendons, large muscles and highly sensitive nerves. Most of us take this juxtaposition of strength, structure and flexibility for granted in our everyday lives--until something goes wrong. Once we're in pain, we're driven to know what's wrong and what it will take to relieve the pain and prevent a recurrence. This newsletter and Spine-health.com should be able to help you in this area.

The neck is susceptible to strain or injury
The neck supports the weight of your head and protects the nerves that come from your brain to the rest of the body.This section of the spine has seven vertebral bodies (bones) that get smaller as they get closer to the base of the skull. Only the top two segments rotate (so you can turn your head).

Acute neck pain is most often caused by a muscle, ligament or tendon strain (such as from a sudden force or straining the neck), and will usually heal with time and conservative treatments to alleviate the pain (such as ice/heat, medications, chiropractic or osteopathic manipulation, etc).

For patients with neck pain that lasts longer than two weeks to three months, or with mainly arm pain, numbness or tingling, there is often a specific anatomic problem. For example, pain that radiates down the arm, and possibly into the hands and fingers, is usually caused by a cervical herniated disc or foraminal stenosis pinching a nerve in the neck. Treatment options will differ depending on the specific diagnosis. See also Types of Neck Pain.

The upper back is not usually a source of pain
The 12 vertebral bodies in the upper back make up the thoracic spine. The firm attachment of the rib cage at each level of the thoracic spine provides stability and structural support and allows very little motion, which means that thoracic disc injuries are rare. However, irritation of the large back and shoulder muscles or joint dysfunction in this area can be very painful. See also All About Upper Back Pain.

The lower back is the most prone to injury
The lower back has the least structural support and endures the most strain, making it the most frequently injured area of the spine.

The motion in the lower spine is divided between five motion segments, although a disproportionate amount of the motion is in the lower segments (L4-L5 and L5-S1). Consequently, these two segments are the most likely to be injured. For example, a herniated disc in this area can cause pain and possibly numbness that radiates through the leg and down to the foot.

Most episodes of lower back pain are caused by muscle strain. Even though this doesn't sound like a serious injury, the pain can be severe.

See also Causes of lower back pain.

The bottom of the spine can cause pain too
Below the lumbar spine is a bone called the sacrum, which makes up the back part of the pelvis. This bone is shaped like a triangle that fits between the two halves of the pelvis, connecting the spine to the lower half of the body.

The sacrum is connected to part of the pelvis (the iliac bones) by the sacroiliac joints. Pain here is often called sacroiliac joint dysfunction, and is more common in women than men. See also What is Sacroiliac Joint Dysfunction?

The Coccyx--or the tailbone--is at the very bottom of the spine. Pain here is called Coccydynia and is more common in women than men. See also Coccydynia, A Real Pain in the Tailbone.
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About Spine-health.com
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Best wishes,
Peter F. Ullrich, Jr., M.D., Medical Director
Stephanie Burke, President
http://www.spine-health.com

Disclaimer: The information in Spine-News and at www.spine-health.com is not intended as a substitute for medical professional help or advice but is to be used only as an aid in understanding current medical knowledge. A physician should always be consulted for any health problem or medical condition.

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Hi,
I went for a Scoliosis Operation close to 6 years ago
when they discovered curvature of my thoracic vertebra
to be around 40 degrees. This was after regular visits
to the Schools' Health Clinic, which failed to inform
me of my deteriorating condiion when the curvature was
still small and not fatal enough to call for an
operation. Neither did they offer any advice on the
possible remedies which I could explore to mitigate