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Thanks Karl, for your input. I was finally put on anti-depressants
about a year and 1/2 ago. I think, well, I know they work wonders for
me!! I am taking wellbutrin.
I guess I never realized how depressed I was, and kinda still are. I
mean if I had one wish, I would wish to see a pic. of what I should
have looked like. I have thought that my entire life. The thought of
it now, still brings tears to my eyes.
My pain is bad, but I think I am just at the beginning stages, that
is why I am so interested in finding information about flat back and
what I probably have to look forward to.
I have been going to physical therapy for about 8 months now.. I
think the excersises are helping my stomach, but every time I do
them, my back hurts more... I really try to do them every night
though..
As for my x-rays of before surgery.. I have tried to get them, I
called my surgeons office 3 times over the years, and they tell me
that they are gone, they dont keep them if I do not continue to
either go to that hospital, or continue to see the doc. And I have
not gone back to either.
Also, another health thing I have going on, is I am insulin dependant
diabetic. I have been for 12 years now. I take 4 shots a day. So, not
only do I have to constantly think about how I am sitting, am I
sucking in my tummy to work those muscles, am I tucking in my right
shoulder blade, how do my clothes fit, when to take my med all
through the day..and so on.. I also have to constantly think about
how I feel, is my blood sugar tweeking out.. when I am going to eat
next, and what will I eat, and how much. So I can determin how much
of a shot I need to take... am I going to work out, or go to the mall
and walk.... ohh it goes on and on....
It just irritates me that I always have multiple things going on in
my mind about my health.. and so many other people have no concept
what so ever of what I have to go through, every moment of every
day...
o.k., I am getting carried away.. I will write more later...
-Trish

Morning Trish Thanks again for stopping by.
I know how the Medical professional's can make having scoliosis or anything else a pain.
I'm going to tell you a little about myself.
The surgery was a typical as far as the medical profession goes I was tool it went well thats a laugh I had pain much more so after
the opperation that before for me it just made it worse.
I was later tool after several visits I would never walk again. I was in so much pain I could not move. Just taking care of myself was a pain actuley if not for Penny my wifey I don't feel I would have made it.
I started seeing a Dr. at a pain clinic here in Houston who was the only person in the medical feild that I thought took me serious.
He first had me try pump morphine ect. all the drugs use to controll pain nothing was working then we tried an expermantel drug finaly it worked but did not have it inplanted, I did not see the pump fiting in my/our life's besides it was very expensive, then he started me on Zanaflex and Zoloft for depression caused either by my having been shot a 16 or having to live in pain for so many years caused by the surger that never worked like it was thought to
Well anyway I never thought it was not going to walk again till I started taking the new meds.
So ask about depression and the Zanaflex they both have worked quit well. I still have pain but nothing I can't handle the meds made it possible for me to be able to deal with the leftover pain which realy is a blessing the Zanaflex made my life liveable again what there is of it.
Well I need to get up can't sit very long will get back at you later.
Feel free to post if you want.
Karl & Penny Coan

Sorry not to have posted in in quite a while. Once I miss a day or
so
on the board it seems to take forever to catch up again. This upsets
me as I really would like to keep up with this board better than I
did
with the last one. I love the vibe here and feel so much more
comfortable posting than at the last one!
As some of you may know, I'm house-sitting on Nantucket for Cam
while
she and her family are vacationing on a houseboat in Canada. This is
my first visit to Nantucket. It's very charming and pretty. My
sixteen-
year-old son, Jack, is with me and it's been great having this one
on
one time with him. We have managed to get lost twice already on this
wee little island. But in all fairness, the town of Nantucket is a
mishmash of one-way EXTREMELY narrow streets. The shuttle buses own
the roads during tourist season and do not suffer visitors (unused
to
a pick-up truck with manual stick and extremely sensitive brakes)
wisely. I'm talking one light tap of the brakes and Jack and I are
peeling our foreheads off Cam and Pete's windshield, sensitive!
I did take the shuttle into town yesterday (a much smarter choice
than
driving ones self) and walked around the cobble
stoned main street. Fun people watching, 'spensive shops!, but next
time I'll wear sneakers, my thick-soled sandals were not adequate to
the task and my back and hips are complaining about it today! (I
will
finally be able to get back to you, Joyce, about those gel insoles,
as
up til now I've been living in a great pair of Teva sandals all
summer)
By the way, I'm using Cam's computer while I'm here. You may notice
that the smiley "online" icon is active next to her name on the
board.
It's just me.
I know this is getting lengthy and I hope I haven't tested your
patience talking about my vacation here, but I did want to take an
opportunity to respond to some of the topics that have been on the
board since I last posted...
First to Lisa; there was a post regarding a change in your surgery
date, but I can't find the original post that says when your new
date
is. I'd like to put it on the calender if you don't mind. If you
could also let me know the surgeon and location, hospital, and any
other specifics you would
care to share. I would like to include email addresses as well, but
am

Hello, I am new to this group. I found this site yesterday, thanks to
Karl!!
I thought I would share with everyone my story..:
I never had any pain while growing up. I was tall, active... until a
family friend came over to the house, and noticed my right shoulder
was higher than the left. I was 11 years old. My mom took me to the
doc, who emediatly referred us to a orthopedic scoliosis specialist
here in Portland, OR.
I dont remember all the details, but I know there was not much time
between my first visit with him, and when I had the surgery, which
was in November, 1981.
I had 2 curves. I dont know how big there were, but they are still
52T and 38L. I grew 3 inches during surgery. I would give anything
right now to have a copy of an pre-op x-ray!!!
I wore a brace for 3 months... I think I healed pretty well...
Then through my teen age years, I never had any pain... until 7 years
ago. Ever since I was about 8 months pregnant with my only child. I
now have a HUGE HARD muscle mass on my lower left side that does not
allow me to do a lot. I can't stand at the kitchen sink for more than
3 minutes at a time. I cant walk a long ways, I cant stand in a line
for very long... you all know the routine... well, I have been on
Muscle relaxers, and pain pills for the last 6 years or so.. and I
finally started my search for a scoliosis doc within Kaiser. well,
for years my docs just kept me on pills (as needed) and didnt adress
the problem, until I went in hysterical one day and demanded that my
doc send me to a specialist. Well, he sent me to an ortho surgeon.
This guy was a real treat.. (heavy sarcasm!!) I sat in his office
with my mom and my husband for an hour and cried the entire time.. I
couldnt even talk.. he ended up telling me to do some exercises, and
I would feel better in 6 months, then as I walked out, he told me
to "buck up"... ohhh needless to say, in front of the whole waiting
room, I, as I am crying, told him "Don't you EVEN tell ME to "buck
up" .. I gave him the nastiest look I could, and walked out.
well, that was about 9 months ago. Since then I have tried to get a
referral out of Kaiser to see my orginal surgeon, but they wouldnt do
it. So, he sent me to another doc. To make a long story long, :-), I
went to see him a week ago or so, and he looked at me, felt my hips,
looked at my x-rays and 45 seconds later, came back into the room,
and said he wanted to run a test. ohh I was so happy!! Someone had
finally noticed me, and wanted to look into it. I go for some kind of
bone scan on Feb. 27th. The doc looked kinda worried.. I think he is
expecting somthing to not be right... I am very nervous about the
test, but I cant wait to get it done either!!!
well, that is a brief story of me... I will write more later.. if you
have any questions, or advice for me, please feel free to post!!
-Trish

George and Linda, Your e-mail caught my attention. It sounds like Linda has
had a tough time with her health. I was curious about her infection. I too
developed a stagh infection post op and required incision and drainage, iv
antibiotics for 3 months and now on doxycycline for 18 months at which time
the surgeon wants to remove all my hardware (I had revision a/p fusion L-4/
S-1 Feb 00. already fused with Harrington Rod from 70's). Apparently the
infection hides out in foreign bodies (screws, rods,etc). Did Linda have all
hardware removed after her fusion became solid? Also I still have bad muscle
spasms in legs and tingling in feet. My legs get so tired and achy, I think
because they are so contrated and tight. Have been ever since surgery a year
ago. Nothing seems to alleviate the tightness. SOunds like Linda has major
nerve problems. I wish I could offer advise, I'm looking for some of your
same answers myself. Nice to know one's not alone. Best wishes to Linda, keep
me posted, thanks...Dana

--- In life-with-scoliosis@y..., "straighter21740" <dlammons@m...

Titch,
A freestanding oven that has a door that opens to the side? I don't
think I've ever seen one except for a microwave of course! Most of the
ovens here pull down. I hadn't thought about a chair for unloading the
dryer, but I do often sit and cook at the stove. It is just too hard
to stand that long. :-)
Kathy

Hello all,
Linda is still not doing very well with her recovery from a long fusion A/P,
S1 - T3, in April '99, followed by an infection in Oct. 99 (required full
opening cleaning), hooks coming loose at T3 August '99 (no surgery until
infection cleared), extension surgery to replace hooks and correct kyphosis
T3 - C6 April 00. Fell and broke her left arm at the shoulder Sept. 00.
Symptoms after last surgery include near continuous muscle spasms in upper
back, chest, and neck. Hot, prickly, and tingling from head to bottoms of
feet at times. Temperature sensitivity and temp. difference in body parts,
redness in various areas. Numbness at incisions on back and left side.
Pain on left side at rib removal site. Heavy feeling in lumbar and sacrum
after being up for an hour or so. Feelings of skin/fascia in abdomen and
back falling down to hips. Feelings of fascia moving across hardware or
bones in neck. Drowsiness, lack of good sleep, and lethargy from drugs
(Oxycontin, Neurontin, Baclofen, Clonadine).
Now, the reason for the note. Did anyone have major and long lasting spasms
following surgery and then find something to stop them? We've tried drugs,
hydrotherapy, PT, exercise, massage, heat, cold, and inactivity. Nothing
seems to help for any length of time.
Good to see some of you at the San Francisco Scoliosis Meeting on Saturday.
Sorry we couldn't stay longer and visit; but, well you know.
Warm regards,
George n Linda

If so feel free to ask just hit reply.
Karl & Penny Coan

Hi Marie...
I don't have a numb area in the area between the graft site and the main
surgical area. However, I do have several other numb areas left from my
surgery. It's very common, and nothing to worry about. It's possible,
even at this late date, for your body to generate new neural pathways.
If you use items of different textures (especially brushes of different
textures), and rub across the area on a regular basis, it's probable
that the feeling will come back.
Regards,
Linda

Hi,
I have had scoliosis for the last 20 years. My back has hurt
occasionally during that time but not too bad. I had my second child
on March 16, 2001. After that I started having increased backpain
and it moved to my shoulder and hip. I also found out I had shrunk 2
inches. When the rest of the baby weight came off I noticed my left
ribs had moved and the unevenness in my hips had increased. I saw a
surgeon last week. My curve is 40 degrees and I was offered
surgery. Not sure what to do. Any advice?

It's not exactly a tool, but to this day I have a dining chair in the kitchen, and sit on that to load and unload the washing machine, get into the freezer, and get pans and other stuff in and out of the low cupboards. I can't use it for getting things in and out of the oven though, because it is one of those loathsome built-ins that has a door that flaps down - I really want a free standing one so that the door opens to the side and I can get heavier stuff in and out of it myself, but it's all money so it can wait.

titch
--
Something unknown is doing we don't know what

I was operated on in 1970. And the numbness is still there as well as
a patch on the front part of my leg. It never came back. It never
really bothered me either. The site was a mess too because I
developed bed sores there but I couldn't really feel them at the time
just after my first operation. However that area was tested prior to
my being allowed to use a TENS at home to see whether I could feel it
enough to know if it was burning me... and I can tell the difference
even though it is fairly numb.
Another weird thing is if I lay on my back on a wrinkled sheet or sit
on a chair without a shirt I pick up the marks and they take several
hours to disappear. My wife noticed that one. She can tell where I
have been sleeping or sitting just from the design on my back. I
wonder if this is poor circulation due to the multiple surgeries and
all that scar tissue.
Odd stuff.
Paul

Hi...I am behind on my mail...
i have heard this about yoga also... our Insurance rep told us that
she has scoliosis and it has been so much better since she started
yoga.... I have been meaning to look this up on the internet...
is anyone doing this???
In Dec I finished the series of shots in my spine and i am
starting to feel some relief... not a lot, but, enough that it seems
to be making me more active, thus, i have more endurance.
Hugs, Ida

Here's a question for ya'll--if you had a bone graft taken from
the hip (iliac crest?), do you have any numb spots around that
point and has the numbness changed over the years?
The reason I ask is mostly pure curiosity. I went to a new masseuse
last week and he massaged my hips slightly differently than my
old one and I noticed that there's a triangle of space between
the graft scar and my spine scar that is absolutely numb. I
could tell he was pressing down, but only because my whole body
moved, not because I could feel the pressure. That space, and
other parts of my buttock used to have pain sensations, but not
light touch, and on some parts I would feel the sensation of
touch inches from where the actual touch was. Now, it's just
plain dead. (worries me a little...I can't see that part 'cause
I can't twist and what if I got a sore or something?)
Some history: scoli surgery in '80 at age 16. Harrington Rods.
Fused T4-L4. My main problems these days are with my SI joints,
but pain is still intermittent and manageable. Remaining curves
about 30 degrees upper and 15 degrees lower.
Marie Jones
Marie F. Jones
Extended Campus Services Librarian
East Tennessee State University
Box 70665
Johnson City TN 37614
(423)439-4336 (office)

Hola

Does anyone mind if I add some of these little helpers to my site so others may benefit?

I use a grabber but mine is actually a garden leaf collector not a proper grabber, it is all my Mum could find at the time when I needed help and I have used it ever since, even my hubby uses it cos he is a lazy git ;-)

Nutty

"Video's" of procedure's.
Just follow this link and be patient no pun intended.
Karl

http://www.spineuniverse.com/index.html?http&&&www.spineuniverse.com/video/index.html

http://www.spineuniverse.com/conditions/detail/ag_juvenilescoliosis3.html

If I have not reached this too late (I spent the weekend in Ireland and having nothing to do with computers), you are welcome to use anything at all that I have written. If it would help, do feel free to send me a list of questions to focus an answer and I'll gladly provide you a picture of my life at the current time that might be more specific and useful.

titch

Karl
http://members.home.net/lindaracine/ScoliosisBraces.htm

Denise,
That's really great! I'm proud of you! You can't lift either leg/foot
more than an inch off the ground? Even when seated? That must be very
difficult for you. I think it is great you have found something you
enjoy doing.
Kathy
Txbluebelle

Hi,

My daughter has had to have a few adjustments made to her brace over the past two years. This was due to her growth more than anything. Her brace is made of a hard plastic that can be shaved down wherever needed. Hopefully they could do something similar for the part of your daughter's brace that is over her hipbone. Hope that's all that's necessary. Jen

Amy,
You are skeletally mature, so bracing is no longer an
option. Surgery, if you have the insurance or the money CAN help, but it's
a whole new ball game and should be entered into only after extensive research,
and multiple opinions. For some people, surgery is the only recourse, and
they benefit from it. Surgical techniques and instrumentation have
improved greatly over the years, and I understand surgery done now-a-days has
much less likelihood of problems down the road. But remember, we are
talking back surgery. The back is a complicated part of your body, and
once operated upon will never be the same as it was before (which is sometimes a
good thing!). Ballpark figures for fusion surgery run from $50,000 to
$150,000, and it requires quite a bit of recovery time, especially for an
adult. There is, usually, considerable discomfort associated with
recovery. At 42 degrees, I question if there is really a need for
surgery. However, you are the only one who knows how you feel, and if your
life is being seriously compromised by your curvature, or if your quality of
life is such that you feel you just HAVE to get some correction, then that
choice is yours to make. Also, if your curvature IS progressing, and the
likelihood is that in a few years it will be more like 60 or 70 degrees, that
would be evidence that surgery might be what you need. Obviously, the less
correction they have to do, the better the outcome.................I think
that's an accurate statement. My daughter had fusion surgery at 28 and I
would be happy to e-mail with you about her experience.
Blessings,
Cecile

Hello everyone
Wow! I am glad that I found this list. I am twenty-five years and
have been suffering from scoliosis. I found out when I was sixteen,
and received a back brace then. I have been to several
chiropractor's, and now using massage therapy as treatment.
Was wondering if anyone know of other ways of correcting it, other
than through just by temporary therapy like braces, physical
therapy/exercising (which I've also attempted). Is there corrective
surgery? I had been told there was. Right now I have about a 42
degree arch.
Any help would be appreciative, and also how much surgery may cost? I
imagine five figures to really have a corrective spine.
Thanks again for listening.

http://www.scoliosis.com/

Hello everyone,
Quick questions my daughter was complaining about her hip so she took
off her brace to find a black and blue. her hip bone you can now see
is sticking out!!! and i think its pushing agains the brace which is
causing the black and blue. One of her hip bones the side that is
curving thats the one sticking out is higher than the other one. Do
you think this means the curve is getting worse:( Any advice or
comment would be greatly appreciated.
God bless
Karen

Hi Everyone,
I think a few people here know that I am enrolled in a Tae Kwon Do
class. Interesting to say the least as I work my way through
learning to do these things in a way that works best for me and
doesn't hurt me in the end. I am not able to do any of the kicking
because I can't get either of my feet more than an inch off the
ground. We tried doing some simple kicks once and that was a
disaster, so now we just avoid them. What great exercise I get.
The patterns are the best, I do them almost every night when I don't
go to a practice and I practice them at home for at least 45 minutes
at a time. My leg muscles are the best they have been in my entire
life. I work mainly on the upper body strengthening. I have
noticed a huge improvement in my upper body strength since I started
in January. My instructor has noticed as well.
Today I passed the test for my green belt. I am now officially half
way to my black belt. The board break I had to do was the backwards
elbow strike. It is like when you elbow someone in the stomach that
is standing behind you.
This little message is meant as a pick me up for anyone who might be
feeling like they just can't do anything anymore. I was there once
and then I found this wonderful Tae Kwon Do school and an instructor
who was willing to take the time and have the patience for someone
like me. I feel fantastic when I walk out of that place. Everyone
I go to class with is so supportive in how I do things and they are
right there to cheer me on as I test for my belts or stripes. It is
trully a wonderful feeling to do something like this and to be able
to show my accomplishments through the different color belts.
I would like to encourage everyone to go out and find that one
special thing that will make you feel like a million bucks each time
you do it. It has made a huge difference in my life.
Denise

Hay Hanna
I also use a Boston brace for 2 years
i had(have..) a big lordosis (42 degrees..)
now i had i 2y8m girl (-:
Good-luck
sarah

Dear Linda:
The next time you see her, would you ask your P.T. if there is a
relationship between spinal fusion and abdominal weakness? I would be
interested if she held the same opinion as my P.T.
C.P.

Hello Hannah,
Im sure it feels a little uncomfortable right now but my daughter has
got use to it she has to wear it 23 hours a day and has been doing so
for 5 months now. And she forgets its even on now:) Good luck with
your new brace!!!
Karen
--- In life-with-scoliosis@y..., "Hannah de Kleer" <hdekleer@h...

Hi Nancy....
I don't know much about kyphoscoliosis, but I do know that the UCSF
scoliosis specialists (Bradford, Hu, Berven & Smith) are well trained.
People come from all over the world to UCSF for scoliosis treatment.
FYI, I run the scoliosis support group in San Francisco.
A brace, at this point, will probably not do anything for Mariah
(assuming she's been determined to be skeletally mature). If she were
my daughter, I would probably get her out of the brace, and have her
continue with PT (hopefully a good one) for six months or so before
making any decisions. Another possibility would be to go back to
Shriners for another opinion.
Since you're already concerned about the financial impact, I would not
get sucked into any unproved alternative treatment. The Copes program
looks slick, but they have never published a single case of a skeletally
mature patient being permanently helped by their treatment.
Regarding radiation exposure, your daughter is actually way ahead of
many scoliosis patients who have had to have regular x-rays from a much
earlier age. There are definitely risks, but the only way to know
what's really happening with Mariah is to have her x-rayed. The
frequency of x-rays should slow down once the doctors know what they're
dealing with. The good news is that UCSF is very good about protecting
the patient. X-rays are taken PA instead of AP (from the back instead
of from the front), and shields are used to protect breasts and ovaries.
Good luck.
Regards,
Linda

Hi Michele! Glad you found your way here. You'll find that this group is much more relaxed and easier to take part in. I too was basically a lurker on the other group, for various reasons. Here we focus mainly on that old dark shadow we all have in common called scoliosis - whether we've been through the revision surgery or not. So please don't feel you don't belong here just because you aren't a candidate for more surgery! I look forward to your participation here. And when you have the time, please do write up your history....we've been trying to have everyone do it to be posted along with all the rest in the Files section for quick reference as to where everyone stands in their journey. And it will not be long and boring! Have you taken a look at some of the others? LOL

Again, Welcome!

~Mary~ (Oh, and I doubt very much that you will claim the title of being the oldest here!)

Hi and Welcome to the message group,

My daughter is almost 15 and has been wearing a nightime brace since she was 12 and a half. Her curve has been holding (at about 32 degrees) and she is almost finished growing. It is very good that your daughter's curve was discovered so early - sounds like she is doing well. Please feel free to email me at: jenniferlucas@...

Bye for now, Jennifer

Hello everyone,
I have just joined tonight so I will tell you a little about my
daughter. She is 11 years old and has scoliosis we found out last
December 2000 and she went to see and orthipedic surgeon that
following Febuary 2001 We got xrays done and found out that she was
19 degrees off and at that time that they would do nothing but see
her in 4 months. We went back in 4 months to find out that her curve
went from 19 to 25 degrees and at that time they said she should
start wearing a brace. She has been wearing her brace 23 hours a day
getting 1 hours out of it each day she started wearing it in Auguest
of last year. WE went back for a follow-up 2 months later and the
brace seems to be holding her at 23 degrees so it seems to be working
we have already had to go for a brace adjustment due to the fact that
her brace was to loose not sure if thats a good thing or a bad thing
at this moment. We go agian this coming febuary for another checkup
and more xrays to We are hoping that things are good :) Well thats it
for now hope to chat with everyone real soon and look forward to
reading your posts.
God Bless and Take Care
Karen

In reply to Andrea's question about a brace: My 14 year old daughter is in a Charleston Brace and has been for a few years. (her curve was discovered at 30degrees) The brace appears to have stopped the curve from progressing. We live in Canada, the brace is manufactured in Florida. It is a night time brace made of rigid plastic. Hope this helps and if you have any more questions please feel free to email me at jenniferlucas@...

Jennifer

I'm a new member with a 16 year old daughter, Mariah, who has been
challenged by kyphoscoliosis for about 9 years. Her doctor kept
saying she didn't have scoliosis using a clinic viewing every time I
brought her in. Finally, I took her to a Shriner screening clinic
and they told me to get an xray. Then the doc took notice.
Basically it's been a watching game until last winter when she was in
so much pain she couldn't get out of bed herself. Finally we were
referred to UCSF pediatric orthopedic clinic in our area. That is a
zoo: wait for hours, no where to sit and then a rushed appt. I
understand the healthcare situation in CA, but I feel like I'm
fighting both the disease and the organization supposing to deal with
it. After our appt. Mariah started physical therapy and wearing a
custom-made TLSO brace 22 hrs. a day. Since Dec. xrays her curve has
increased. Original doc says let's get new one. Doc she referred us
to also at UCSF says don't wear the brace, just do PT. A third doc
we met with just to see what someone outside of the system we've been
dealing with thought said, let's operate! M's kypho curve is nearing
80% and her scoliosis curve in a brace is 18%. New xrays without her
brace were taken yesterday. How do we know what to do? I've been
using the internet and it seems you have pain with or without surgery.
She is in pain and has limited phyiscal activities outside of PT,
some walking and swimming once a week. Lately her stamina level,
which has not been much, seems to be lessening. A five minute
workout with stretching makes her want to lie down and rest. Does
anyone have any experience with KYPHOscoliosis? Copes bracing
system? Supplements for bones. Some comments about UCSF don't
sound too confidence-building. I've tried to check out Drs. we see
and read about on orthospine.rep, but few are shown, and most have
only 1 rating. We have insurance, but the balances left after xray,
(seems to be monthly) MRI, brace, office visits, lab work, physical
therapy, etc. are, after only one year, starting to impact us
financially. I'm also concerned about the ongoing radiation exposure
due to all the xrays. Any comments would really be appreciated.
Nancy

Been having health problems and have noticed a few people have joined
that might need some help, if so just post us.. Other wise hope everyone
has a nice pain free day.
Karl & Penny Coan

Hi:
Nope, never had Harrington Rods, they took bone out of my hip and
fused the spine. It's fused from about L2 to T? (about a foot)
My neck is fusing on it's own, not that I want it to!
Susan

Thanks, Scott!
Sort of makes me homesick for our old stompin' grounds.
:^)

=========================================================
Hello Andrea I been having problems with our e.mail did enyone ever
get intouch with you?
If not let me know please.
Karl

http://bmj.com/cgi/content/full/323/7327/1446

Oh Scott,
Those so reminds me of a certain someone who stuffs the seams of little
squares in yet another box of immortality!
Kathy

Hi everyone!
My name is Andrea, i'm 15 and i have scoliosis :(
I was diagnosed with scoliosis 8 months ago, i had a curve of 41
degrees.
I didn't follow a really serious treatment because that was i was
told, only some excercises at nights, swimming, i stopped playing
soccer and tennis.
Last Monday i took my new x-rays and it got worse, 4 more degrees!!
I'm really upset, i don't know what to do.
A surgery really scares me, and i have heard is very painful and the
recovery is very very long.
Searching in the internet i found the copes brace, does anyone has
herad of it or even use it?
Please if you know anything about this brace, or about another brace
excepting the milwakee and the boston, please please please let me now
I understand how do you feel, so if you need anyone to talk to, don't
hesitate and email me!
le_monhead@...
GOOD LUCK!!!

This may be something some might be interested in.
If so contact us with any questions mailto:coank5531@bigplanet....
This is some thing that can be worked at home in your own time being you will be the boss.

I know how much expensive medical help and the little things that go with it, not to think of future things.
Hope this helps cause that all it is meant to be a way to make money.
Karl

P.S. If the entire site doe's not come up click on the link. If you need help just post us.

Sorry i haven't posted for awhile... went through a horrible
depression and then started treatment on my hips and am beginning to
feel better.. Also, had a epidural in the lumbar and then steroid
injection and my spine is somewhat relieved... it has given me hope,
and so made me feel better...
Good to see some new members...
Hugs, Ida

Is anyone practicing yoga for relief of pain with a moderate amount
of scoliosis? I've been finding some relief with my own knowledge,
but I'd like to know more.

Hello zammera1356 can't help with the yoga but have read allot about it helping some but I have herd it can be so relaxing it's bad for some beit a small amount of people.

Also I would like to share some of my feelings/symptoms regarding
this illness.

Feel free to post when ever you wish to vent which as far as I am concerned initial's feeling, symptom's etc. will gladly talk about it...

I didn't realize I had scoloisis or what it was, until my late
twenties (I am now forty one). A chiropractor I sought for back pain
explained it to me.

A lot of people did not have any idea what it was I may say I one, and until I reached 50 due mostly too denial did not know much about nor did I want to. until lately thanks to the wife.

I haven't had too much of a painful time until my recent bicycle
accident. I have a fractured clavicle that isn't healing and I'm in a
good deal of pain from that also.

Most people with scoliosis due not experience pain from it till later in lifer for me it's been hard to deal with no thanks to the bullet I acquired on my 16th birthday Happy B/D what a joke.

Feel free to post anytime you want about whatever you want.
Talk at ya later.
Karl

Hello Michelle,
We are so glad to have you here! You do NOT need to be planning
surgery to be part of this group. You do need to participate. Why?
because I'm just sure you have something important we all need to
hear! We'll figure out how to get you into chat. Why don't you ask
Scott and see if he can help you? We'll be chatting again on
Wednesday night.
I'm really looking forward to hearing your history. Have you checked
the front section to see where Ann has collected some of our stories?
Kathy
Txbluebelle

Enjoy!
http://www.bulwer-lytton.com/lyttony.htm
Scott

Is anyone practicing yoga for relief of pain with a moderate amount
of scoliosis? I've been finding some relief with my own knowledge,
but I'd like to know more.
Also I would like to share some of my feelings/symptoms regarding
this illness.
I didn't realize I had scoloisis or what it was, until my late
twenties (I am now forty one). A chiropractor I sought for back pain
explained it to me. I
haven't had too much of a painful time until my recent bicycle
accident. I have a fractured clavicle that isn't healing and I'm in a
good deal of pain from that also.

My daughter is a success story of surgery with harrington rods. She
was 14 when she had her operation and was playing softball 10 weeks
later. We had trouble finding information and help back then (4 yrs
ago) and would like to start a support group here in our town. Any
information on support groups would be appreciated. Polkadotaz@...

http://www.shrinershq.org/WhatsNew/viewpoint8-01.html

Scott,
That is priceless! I haven't laughed so much for quite a while!
Unfortunately, my system has mutated and I can no longer eat
chocolate.
Kathy

OK NOW - just let me say--------thanks for making me laugh! Not too much brings a smile to my face nowadays..............I needed that! :-))

~Mary~

Hi Gang. I want first to say how happy I am that
Sharon has told me about this new group. I was in
that "old" group until I bowed out about 4 months ago.
I'd like to say that I could see the writing on the
wall, but the truth is I was getting stressed just
reading that board. It was doing for me just the
opposite of what it should have.
Some of you may not recognize me or know me because I
was pretty much of a lurker on the other group, and I
may just become that here as well, although I do have
a few posts to write right away. The reason I was a
lurker is frankly I don't belong in this fine group.
I am not a candidate for surgery, however, I do want
to keep up with all the latest happenings in the land
of scoliosis. Besides that, it's great to meet up
with folks like you who have similar problems. I will
eventually do up a history of my scoli experience. It
will probably bore all of you and will be long. I
believe I am also one of the oldest members.
Initially though I wanted to say how happy I am to
have been reunited with all of you. I will write again
soon.
Michele
PS. I almost forgot. I tried to get into chat the
other night, and couldn't figure it out. I'm somewhat
computer challenged as well!

I have a file with only my very favorite jokes. I just posted the
first one...

Krysi...
I was on NSAIDs for many years. During that time, my rheumatologist
gave me kidney and liver function blood tests every six months. He told
me that he could tell if I ever started having kidney or liver
problems. So, I was never to concerned about that. Unfortunately,
however, apparently one can bleed to death without much warning if the
NSAID burns a hole in their stomach. So, I finally gave them up. It's
a difficult decision. I definitely felt better on the NSAIDs.
Regards,
Linda

Ha Natsha;
have you found your way around?
If you need help ask OK?
As far as your saying you had it with medicine I think most of us feel that
way we are all looking for the truth with there seems no to be or an
alternative therapy non-invasive.
I have been hearing good thinks about yoga and other forms of exercise also
have read about Acupuncture something worth looking into that to has proven
when done right like anything else has great pain relief, I have never liked
it because yes it help but on a very temporary basic And I hurt all day
every day.
I am taking a new medicine called Zanaflex wemove.org has some weightings on
it if you wish to look

Whenever I get a package of plain M&Ms, I make it my duty to
continue the strength and robustness of the candy as a species. To
this end, I hold M&M duels. Taking two candies between my thumb and
forefinger, I apply pressure, squeezing them together until one of
them cracks and splinters.
That is the"loser," and I eat the inferior one immediately. The
winner gets to go another round.
I have found that, in general, the brown and red M&Ms are tougher,
and the newer blue ones are genetically inferior. I have
hypothesized that the blue M&Ms as a race cannot survive long in the
intense theatre of competition that is the modern candy and snack-
food world.
Occasionally I will get a mutation, a candy that is misshapen, or
pointier, or flatter than the rest. Almost invariably this proves to
be a weakness, but on very rare occasions it gives the candy extra
strength. In this way, the species continues to adapt to its
environment.
When I reach the end of the pack, I am left with one M&M, the
strongest of the herd. Since it would make no sense to eat this one
as well, I pack it neatly in an envelope and send it to
M&M Mars, A Division of Mars, Inc.
Hackettstown, NJ
17840-1503 U.S.A.
along with a 3x5 card reading, "Please use this M&M for breeding
purposes."
This week they wrote back to thank me, and sent me a coupon for a
free 1/2 pound bag of plain M&Ms. I consider this "grant money." I
have set aside the weekend for a grand tournament. From a field of
hundreds, we will discover the True Champion. There can be only one.

From: "jettech" <jettech@...

Very Interesting article.
http://www.cdc.gov/mmwr/preview/mmwrhtml/00001284.htm

Oh pleaseeee don't Scott!

~Mary~

Spinal manipulation fails to improve scoliotic curve. Researchers at
two chiropractic
colleges found that chiropractic
intervention had no discernible effect on the scoliotic curves of
children ages 6 to
12.. The study involved 42 children who were
treated for a year with full-spine manipulation. Some of the children
were also
treated with heel lifts, postural counseling, and/or
lifestyle counseling. The scoliotic curves ranged from 6 to 20
degrees. The authors
stated that although case reports abound, this
was the first published clinical trial of the effect of chiropractic
treatment on
adolescent scoliosis. [Lantz CA, Chen J. Effect of
chiropractic intervention on small scoliotic curves in younger
subjects: A
time-series cohort design. Journal of Manipulative and
Physiological Therapeutics 24:385-393, 2001]

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?db=m&form=6&dopt=r&uid=11514815

http://www.quackwatch.com/00AboutQuackwatch/chd.html

If you receive your messages in the digest format, each individual's email is
listed at the beginning of each message. Hope this helps.
Peggy Greene

Do I have to start posting bad puns or jokes?
Scott

I buy the foam "kneelers" in Brooks' Drug for about $1.99. I think that I have one in every room in the house. At least, that is my goal. That way, I don't need to wear anything, but can grab one easily to kneel to get under the bed, etc.

Just my two cents.

Carole M.

Hello,
I am new to this whole group support thing. I love the idea though.
I had back surgery (harrington rods) 7 years ago. I am now an adult
living with scolosis. I don't know anyone else at all going through
what I am.
Anyone in the same situation feel like sharing? I am still in pain. I
miss a lot of work even though I am a successful businesswoman. I
know it will affect me for the rest of my life, but it's like I try
to ignore it and wonder why I can't function like everyone else.
I don't feel sorry for myself. If anything I overcompensate and am
hard on myself when my pain gets the worst of me. I am sick of taking
pain killers, though and wondering if anyone has had any success with
alternative methods.
Can scoliosis affect other areas in your body? I have had ongoing
stomach problems since I was diagnosed with scoliosis as a child and
I believe I saw a poll on a website regarding this subject. My
doctor's have never been able to help me; they say its just stress.
Let me know. I would totally appreciate any reply from anyone out
there. I'm 21 now and know I'm going to have to live like this for a
long time to come. Just want to educate myself and make it easier on
myself. Knowledge is power as they say.
Thanx!
Natasha Belzil

While adult bracing doesn't work to correct the curve they do have
their use. I wear a Harris brace when I am out walking or driving for
added support. I don't wear it much around the house though because I
am afraid that my stomach muscles will suffer making the situation
worse.
Paul

Just wanted to say to those facing surgery that all my pain is not from having scoliosis along it involves much more, I was shot the eve. of my 16th B.D. and it left me with many other troubles so please don't
let my complaining about so many other health situations from time to time confuse your decision what ever it many be... Myself I have always been in a gray area with medical field sure wish it was not so but it is what it is...
Finding what is right thing to do is not always so...
Everyone is different and the only way to find out what is right for us is having information to all data.

Karl

[INLINE]

* http://www.spineuniverse.com/index.html?http&&&www.spineuniverse.com/aans/aans_chronicpain.html

Dear Llweyn,

I'll pass the Jacuzzi tub idea onto my sister-in-Law, she has fits cleaning her tub. Thanks for passing that one on!

Susan

Colorado Springs

I went into a brace at about your age. Over the next
4-5 years, my curve increased from 27 to 94 degrees.At
age 59, I had surgery (last Oct.). The brace did help
the pain and balance.
=====
Jeanette

For cleaning the Jacuzzi tub, throwing in some Automatic Dishwasher detergent and turning the tub on works wonders. Just be sure to refill the tub with plain water, turn on the tub, to rinse everything out of the jets.

I heard of one lady using the detergent for soaking her whites and they came out sparkling white. I'm not sure how much damage that does to the fibres, though.

Llweyn

Good read. I have struggled with there not being an answer for the disabling pain I have suffered with till lately... It talks about the pain pump and numerous other new techniques to help with chronic pain.........It is really worth thinking about one is no longer trapped... I have felt trapped because of pain for years it almost destroyed our life's what little we had if not for our son it would never have been possible..Watching him grow up into a man as well as a fine and respected Dr. of med. and my wife has really made it for me... :)

Karl

*****************************
Keep an open mine and smile...
*****************************

[INLINE]
Help American.
Love and one should be more understanding of others we are all to quick to judge.
Feel free to copy the ribbon and attach it to your e.mail..To copy place you cursor over the image then click with the right side mouse button then save to a file, if you need help feel free to ask..

______

Well, after 2 hours of fiddling, I got the brace.
The good news is, they cut down the top and bottom and made more room in
the back so the regular brace fits better (and they said I had lost 2
inches from my waist, a good thing!)
The bad news--they didn't think it would work. I still have a tendency to
tilt forward, a sign that the screw is not staying in place even with the
brace. Also, I envisioned a plastic thing with a hinge--this is a long
brace with two long steel things, and Velcro straps (I'll try to take a
photo and put it up in the files section for everyone to see).
The "hinge" is very low tech--it's got a slider thing that will only slide
on and lock if I'm straight, and you have to lean back to slide it up, then
you can bend the knee.
So I can walk, but it's very difficult--I look like I've broken my leg, and
my friend who took me to the Orthotics dept. said, "Oh, it's Frankenstein",
because you have to drag the leg the brace it on. (Actually, he's my
ex-boyfriend--we got into a big argument on the freeway, because I told him
to get off on the "Daly City Exit", and he kept saying there was no such
exit, and then we came to the sign--said "Daly City, 280" right on it. He
still denied reality, showing me again why I broke up with him!) But I
digress..
Even thought everyone says it probably won't work, I'm trying to focus on
the fact that 1) it helps with the pain, since it makes the pin stay in
place more or less, and 2) It will help me walk a little farther, as long
as I take my cane.
So physically I'm a little miserable, and disappointed, but I got the "Less
Stress Surgery" tape, so I guess I'll begin preparing for the "probable."
Nancy in the East Bay

LOS ANGELES SCOLIOSIS & SPINAL DEFORMITIES CONFERENCE
LOS ANGELES SCOLIOSIS & SPINAL DEFORMITIES CONFERENCE
LOS ANGELES SCOLIOSIS & SPINAL DEFORMITIE
LOS ANGELES SCOLIOSIS & SPINAL DEFORMITIES CONFERENCE
S CONFERENCE
LOS ANGELES SC
LOS ANGELES SCOLIOSIS & SPINAL DEFORMITIES CONFERENCE
OLIOSIS & SPINAL DEFORMITIES CONFERENCE
Content-Type: multipart/alternative;
boundary="

Hi:
I'm Susan, 54 and counting, and am looking for all the info I can get. I have
double
double S scoliosis that goes all through my spine and neck and probably have
flat back from 2 spinal fusions as a kid (I certainly have all the symptoms).
I've
had numerous bouts of MRI's and Xrays recently, although I've been trying to
convince doctors that I needed this 6 years ago. I won't go through all the
symptoms, I'm sure you have ones of your own. I could live with it this way,
but
know that it's progressing really fast. I've read that braces don't work on
adults,
but want to know if anyone's had luck with them stopping the progression.
Susan

Since we can't be bending over all the time, a good pair of kneepads is
essential, especially for gardening. I like the kind that is like neoprene,
with velcro straps. Indoors I usually just kneel on a foam pad that I keep
handy in the kitchen.
I use grabbers, but am not good at keeping one handy. My most reliable
grabber is my right foot.
I also like my long handled scrub brush, for stubborn spots on floor or
carpet, and for scrubbing out our big Jacuzzi bathtub. I think it's from
Fuller Brush, but they don't seem to have the same one any more. Here's a
similar one. It may work even better without the swiveling head mine has.
http://shopwynns.com/fuller/premium_scrub_brush.htm
Sharon

Please get other opinions my curve has been mesured 43% 72% a complete
90% and then last month 53% all in that order ...so as you can see the
persons mesurement could be the differece between a brace or operation.

Hi
I am new to this group. My 16 year old son had a 25 deg curvature in July last year - this is now 35 deg.
I once listened to an osteopath cum siatsu therapist claim that scoliosis was reversible in some cases where there was an energy imbalance, manifested by hormonal problems.
An iridologist did not find anything wrong with my son, other than abnormally large pupils, which he said indicated adrenal gland problems. Does anyone know if large pupils and scoliosis go together?
Boerike lists 6 homeopathic remedies for scoliosis, with Calc Carb indicating large pupils. Anyone have experience?
Thanks
Andre

Hello all,
I thought it was about time we got a new talking point going on
here. Cam is on vacation, but before she left she was kicking around
the idea of coming up with a file or list of household aides we found
helpful in cleaning, etc.
We already talked about the Mr. Clean bath wand and a bit about the
light weight and ease of the Swiffer mop. I was wondering if anyone
has any other tips on how to cook, clean, or deal with personal
grooming that can make life easier.
Eventually, it would be a good idea to put a list of items or web
pages for specific items. What is your absolute favorite reacher? I
have one that is about 15 years old, but it is bent!
Actually we could probably use TWO lists. One for specifics that are
needed right after surgery and another for everyday living!
Kathy
Txbluebelle

My 13 yr old daughter was just diagnosed @ the end of July w/
scoliosis. Her curvature was 65 degrees.It had been "missed" during
all her normal school physicals, Dr. visits, etc. The severity was
quite a shock to both of us. I pursued having her back checked out
because I thought for sure she had a curvature but expected a brace,
not a surgery recommendation immediately. This was hard for me
because I am a Pediatric RN & felt very "more than devastated" that I
had not pursued it sooner & w/ more ferver, etc. Talk about the
guilt! I have tried to let go if it but it is still bothersome to me.
Our peds othro surgeon is well known to be an excellent physician in
our area & I have confidence in him. We are going ahead w/ the
surgery on Nov 1 because I cannot find, in all my research on MANY web
sites-- both traditional medical & alternative sites, that there
is any other way to treat her @ this point. We did go to a local
alternative Dr. who simply said it appears she will need the surgery.
She is having a very hard time accepting that surgery is coming up.
This week & next is filled w/ all the pre-op tasks such as blood
donation, pre-admit EKG, CXR, labs etc.
I am taking her for another second opinion (w/ortho surgeon)tomorrow
for both of our peace of mind. It is now the my daughter's emotions &
fears that are the most difficult to work through. She has read alot
on some of web sites mentioned here. I called our Dr. & he gave us
name & number of a teen that went through the surgery but she hasn't
called her yet. Our family is supportive and we have strong faith but
it is still very hard. Any suggestions for the few weeks prior to
surgery? How to prepare mentally/physically? I know everyone has
individual experiences but appreciate being able to vent here & be
"listened to".
Best regards, Rebecca

Hey, Nutty!

That's great, about having a little nutty bun! I hope it does go well for you.

Those sound like pretty serious symptoms you've been having. I'm glad you have a doc you like. I'll have to check out that site of yours!

Take care; I'm sure we'll talk again.

Sharon

http://members.home.net/lindaracine/RobertWinterArticle.htm

...we are planning to have a "Nutty Bun"...
Is that first and middle name? What a scary and exciting plan! Hope it
all goes great!
kam
p.s. I haven't emailed LG yet, but will. I'm doing my best to keep my
head above water at present!

Hola Chica!

Thanks for the welcome on the site, nice to see you again, I never disappeared just started my own group and have enjoyed building my site and meeting others, it's been fun.

Anyway back to your "pertinent" question ;-)

To be honest I have not got that far really, I had an MRI last August and then discussed that with my doctor, he has offered me many tests regarding my facet joints but I have turned it all down, cos I am scared, I had an S1 injection in 1998 and it was chuffing awful I swore to never have it anything like that done again, I am great at ignoring symptoms and getting on with things and yes I know I have to help myself and all that jazz, so I started Yoga and swimming and cycling on his advice and that was going so very well I was feeling great and dropped 3 and a half kilos, I really don't want revision yet as we are planning to have a "Nutty Bun" so I wanted to get that out of the way before I headed down the road for further surgery, my surgeon seems to think that being pregnant will feel good and he does not anticipate much pain during that time.

However, this last 2 weeks of pain scared me to death, I have been using a wheelchair and was unable to go to the toilet on my own blah blah blah, am sure you know the score, so that doesn't really answer your question LOL it is something I will discuss with him on his return from his holidays, he is a great man and I do trust him, he is a member of my group and we are planning a chat time on the group so my members can ask him stuff, he is also listed on my website.

Take care chica and speak soon

Nutty

If the site doe's not load click on the link...

Karl

Here's the link...

* Spineuniverse

Here is a very good site for info. on an assortment of different spinal
disorders it also has a link explaining products for the back.
Karl

The best defense against NSAIDS is still Cytotec. It forms a muscus
wall between the drugs and the lining. This is the same type of layer
that the drug destroys in the first place. However the results are
not perfect and taking NSAIDS over a long period of time usually
results in something bad happening to your digestive system. I have
ended up in hospital more than once with bleeding due to NSAIDS but
then you get to eat jello for a week or more while they prod you with
video cameras, where cameras were never meant to be, so maybe it is
worth it:)
My preference is still ADVIL, the real one and not the generic, with
a Cytotec chaser. Seriously though I take MS Contin now on a daily
basis because I need the relief and can't tolerate NSAIDS for more
than very short periods and that includes Vioxx and Celebrex.
So if you do feel any symptoms when taking NSAIDS get to a doctor
quickly because the bleeding can be quite serious if it isn't stopped
in time.
Paul

I agree, Llweyn, and thank you for offering to share what you know.

Sharon

Susan,

There were a few members that had commented that they were no longer members and didn't leave on their own accord. I was just offering them the response that was made, if they were interested and to help answer some of those unanswered questions that remain from that board. I was only trying to help, like I hope someone would do for me, if I was in those shoes. That is why I said that they could e-mail me privately. My reason for mentioning posting on this board was if there was a huge response. That was all. Sometimes in getting past unpleasant things is to understand the situation. I have not felt that comfortable on that board for a while myself, but I continue to read the messages for some useful information (always considering the source, regardless). Besides I have had a lot to deal with lately and for those that know some of the things, my sister-in-law is home, glad to be there and getting stronger everyday.

I'm glad Cam took the lead and started this board. I give her credit for starting and setting the tone of this board for she has never given the impression that she owns the board, just started it.

Llweyn

Rebecca;

Count me among the people who have taken NSAIDS daily for 20+ years. My
internist suggested that I start taking Pepcid a couple of years ago, and
poof - no more heartburn except on rare occasions when I've eaten something
really spicy or greasy. I still take Aleve daily but with no adverse side
effects thanks to the Pepcid. Alyssa

I had figured it was the St. John's list you were speaking of. I know Phil
Schwarz (one of the listowners) well; I don't subscribe to that list (though I
subscribe to the ANI list) simply because I get too much e-mail.
Nice to meet you.
--
Laura Tisoncik
tisoncik@...

Dear Llweyn,

I think it's best to leave the whole thing alone and move on, that is what I did by joining this group. Hashing it all up in my opinion isn't productive, and can only prove to stir things up that are in the past. If people want to go from group to group thats their business, but please lets just let this group be what it was formed for, an open kind supportive place for people like ourselves who struggle with Flatback. I'm not a person who wants to dwell on the unpleasant things of the past, but to move on. I wish the other group luck, it just wasn't a place I felt comfortable being anymore.

Susan

Colorado Springs

Thanks for the info Karl.... just got back from the spine
specialist and he gave me a shot in both hips and recommended an
epidural in the lumbar... what have you heard about this... and
didn't you get this done??
Hugs, Ida
--- In life-with-scoliosis@y..., Karl & Penny Coan <coank5531@b...

Llweyn,
I believe the message you are referring to has been retracted from the
other board. Of course that does not erase the individual messages or
digests that went out to members. Like some earlier messages, it just
disappeared without comment.
Kathy

This might help just came across it,if the page doe's not load click on the link below.
Hope it helps.
Karl

I know quite a few here were members of the "other" board, and some
may still be members. For those who are no longer members, especially
voluntarily, there was a comment made "All are welcome here? You mean
all who you didn't kick off the group when they didn't agree with
you...." by a fairly new member. If anyone is wanting to know the
response, they can e-mail me privately or I can post it here, with
moderators' permission. It might answer a few questions for those who
didn't voluntarily leave. I am not wanting to stir up trouble or
reopen hurt feelings, but I believe in open communications and having
certain questions answered.
Llweyn

When I select reply to a message I get sent to the post page. At this
page on the "To" you can select the group or the individual. This is
where you can reply to an individual without going to the group.
Paul

My boss just told me today I have to have a note from my doctor saying
it is ok for me to do each aspect of my job...i work with mentally
retarded children and often have to assist aids in restraining them. I
do not think my doctor is going to ok me do this, and i think my boss
knew this. I actually think she was trying to be nice but this could end
up being a problem. I have short term disablity insurace which would
cover me if I had just hurt my back...but this is not an accident.
Anyone have any knowledge on how isurance such as short term disablity
through your employer treats scoliosis. I missed all last week with my
back I am suppose to go to a pain management doc soon. Thanks for any
info

Just a reminder -
West Los Angeles Scoliosis Assoc. Chapter Meeting
Guest Speaker - Slyonia Haymond
Topic - Insurance, disability and how the
scoliosis & chronic back pain patient can work with
the system
Wednesday, Sept. 26, 2001
7:00pm - 8:30pm
Cedars Sinai Institute for Spinal Disorders
444 S. San Vicente Blvd., Suite 800
Los Angeles, CA 90025
(310) 423-3127
Scoliosisassociation@...

<snip

Hi.... I have a different kind of question, but, you seem to
have the ability to find various resources in the medical line.. my
daughter is director of Human Resources at a wonderful Nursing Home,
and she has searched & searched for a listing of LPN's and RN's ...
seems the resource they used to use is no longer sending out these
lists.. She just started this job about 3 months ago, and she & i
have looked on the internet,but can't find anything like a listing
of this type. Sure hope you have some ideas of where to look...
Thanks in advance...
Hugs, Ida

No I don't will ask Penny when she gets home.
Will get back to you a little later...
Mean time you might try posing that same question to the healthfrauders.
http://www.quackwatch.com/
Karl

Trauma Pages initials almost every human emotion...

Click on me!

My stomach told me before their panel did.... Neither Celebrex or
Vioxx were easier on my stomach. I had to stop taking both of them
because of stomach problems. However I wonder if having taken NSAIDS
for so long, about 30 years, that my stomach just can't stand any of
them any longer no matter what they are.
Paul

My mom found mine when I was around 6 also went to the doctor and they said I
had scolosis it would probbly never be a problem just watch it. I was not a
problem my curve never even was severe enough for a brace until my junior year
of highschool. I started having back pain went into the docs and he said my
curve had progressed due to a growth spurt so he sent me to another doctor to be
fited for a brace. This doctor visit was 2 months later and my curve had
progressed to the point of surgury ..this doctor and 4 others told me regardless
of having the surgury or not I would end up in wheelchair by age 20. I did do
physical therapy to strengthen my back muscles for years but once I was in
college I stoped. I have had 2 times where I could not walk or function but for
the past 2-3 years I have had little to no porblems from my back. About 5 months
ago I started having the bad pain again and now I have missed 5 days of work
with it...I can barely walk from the bed to the bathroom. I went in to see the
doc and she siad it was severe muscle spasms and she would not refer me to an
ortho because she did not feel surgury was the best option for me. I have been
reading about adults with sever scoliosis being placed in braces not to correct
but to improve stability and pain management. I am afraid I am fixing to have to
quit my job over this . anyone with any suggestions or who knows of a good MD
with scoliosis experiance in the southeast usa Please drop me a line.

There has been a few off-topic messages the last few days. In most
cases they are just private chit chat between friends. I have let
most of them though. However in the future I ask you to keep things
more or less on the subject of scoliosis, disability, etc. The
private chit chat should best be done privately. Remember there are
140 members now and your private banter is going to each one of
them... If it continues I am afraid a lot of people will leave. So I
will be filtering them a bit more from now on.
Also please try to edit out the previous messages when you are
replying or at least the extra stuff in the messages. There have been
a few that have repeated several messages before I edited them
myself. These mega-messages are archived for about two years and
waste space which is not unlimited on this service.
This group is a great so far. We have avoided to a large extent the
problems elsewhere. Your attention to this matter would